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this converstion with Ray and |Jan has hit a mark; the need to be HEARDand UNDERSTOOD so often with family and evesn or especially our doctors I get the impression I m just a nuisance and SHOULD TRY HARDER . well it takes effort just to get up and dresed and move throught the day without whinning a nd complaining . everything hurts , Im dizzy tired dont sleep . swollen legs, but there is no visible outward sign of distress so I must just be malingering. and very worried about the future - it only gsets worse progressivse , dibilitating , dependendcy, dementia, depression. actually the only information on treatments , coping , and sides effects has come from this and other web sights, thank you all . My doctor just hands a presciption and says see you next year . Edema weight loss pain stifness insomnia - if I dont mention i t he doesnt and I dont think takes it seriously sory to rant so but this morning I just had to riginal Message ----- From: "Jann Bell" <[log in to unmask]> To: <[log in to unmask]> Sent: Friday, May 06, 2005 4:19 PM Subject: Re: uncertainty of PD/Jann > Any coping mechanisms in this household come from me. My Dad's primarily > attitude is one of denial. I know that the listserv for caregivers is the > preferable venue for venting and I am a member. I was just trying to get > some feedback on the anti-depressant recently prescribled for Dad from > people who are PD people, not caregivers. After reading the listserv I > truly believe in and trust the input from people, who, like yourself, are > actually living the PD life and who are not in denial and who are trying > to make the best of a terrible situation. Thanks for your input. Jann, > caregiver to Dad, Jack, 78 yo > > rayilynlee <[log in to unmask]> wrote:Jann, > > I tried to explain to the psychologist at the Support Group I attended > that > you just get accustomed to your situation when it changes for the worse. > His Rx was for me to count my blessings, have a positive attitude and > compare myself with people worse off. This was not helpful to me. I need > strategies for coping alone. I probably do feel sorry for myself from time > to time, but my big concern is getting from point A to point B(literally > without falling) Example, getting my groceries online has been a great > strategy. > > The hardest thing (I think) about PD is like M.J. Fox described it as > being > in the middle of the street, knowing a truck is coming, but you don't know > just when. Although it is true we all face the unknown, we Parkies do have > special challenges. It would be nice to be understood. > Ray > ----- Original message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn