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I sure do hear you M. Jakobsen. My problem is I look so healthy...I don't look sick and am not screaming (I can barely speak)bloody murder, so how bad can it be? You have given a good description of what our lives are like. When I saw the video of Christ dragging that cross in Mel Gibson's new film, I could identify..just another day in my life. I personally like the clips from an old Monty Python movie where all these guys were being crucified by the Romans singing "Looking on the Brighter Side of Life" It was a scene kind of like Mel Brooks' "Springtime for Hitler". There was also a scene with a knight still fighting with no arms, legs or head. I'm going to look for these movies next time I drag myself to the video store. They were really funny. Ray ----- Original Message ----- From: "M. Jakobsen" <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, May 07, 2005 5:55 AM Subject: Re: uncertainty of PD/Jann > this converstion with Ray and |Jan has hit a mark; the need to be > HEARDand > UNDERSTOOD > so often with family and evesn or especially our doctors I get the > impression I m just a nuisance and SHOULD TRY HARDER . well it takes > effort > just to get up and dresed and move throught the day without whinning a > nd > complaining . everything hurts , Im dizzy tired dont sleep . swollen > legs, > but there is no visible outward sign of distress so I must just be > malingering. and very worried about the future - it only gsets worse > progressivse , dibilitating , dependendcy, dementia, depression. > actually the only information on treatments , coping , and sides effects > has > come from this and other web sights, thank you all . My doctor just > hands a presciption and says see you next year . Edema weight loss pain > stifness insomnia - if I dont mention i t he doesnt and I dont think takes > it seriously > sory to rant so but this morning I just had to > > > riginal Message ----- > From: "Jann Bell" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Friday, May 06, 2005 4:19 PM > Subject: Re: uncertainty of PD/Jann > > >> Any coping mechanisms in this household come from me. My Dad's primarily >> attitude is one of denial. I know that the listserv for caregivers is the >> preferable venue for venting and I am a member. I was just trying to get >> some feedback on the anti-depressant recently prescribled for Dad from >> people who are PD people, not caregivers. After reading the listserv I >> truly believe in and trust the input from people, who, like yourself, are >> actually living the PD life and who are not in denial and who are trying >> to make the best of a terrible situation. Thanks for your input. Jann, >> caregiver to Dad, Jack, 78 yo >> >> rayilynlee <[log in to unmask]> wrote:Jann, >> >> I tried to explain to the psychologist at the Support Group I attended >> that >> you just get accustomed to your situation when it changes for the worse. >> His Rx was for me to count my blessings, have a positive attitude and >> compare myself with people worse off. This was not helpful to me. I need >> strategies for coping alone. I probably do feel sorry for myself from >> time >> to time, but my big concern is getting from point A to point B(literally >> without falling) Example, getting my groceries online has been a great >> strategy. >> >> The hardest thing (I think) about PD is like M.J. Fox described it as >> being >> in the middle of the street, knowing a truck is coming, but you don't >> know >> just when. Although it is true we all face the unknown, we Parkies do >> have >> special challenges. It would be nice to be understood. >> Ray >> ----- Original message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn