Whoa! Your doctor hands you a prescription and says see you next year?
That is inexcusable. I don't know where you are located, but if there
is any choice in doctors at all please consider getting rid of the one
you have and finding one who specializes in PD and will not only hear
and understand you, but also try to give you some relief.
Your doctor is the one who should try harder.
Kathleen
P.S. I am pretty sure most people on this list appreciate and
understand a good rant! :-)
-----Original Message-----
From: M. Jakobsen <[log in to unmask]>
To: [log in to unmask]
Sent: Sat, 7 May 2005 05:55:54 -0700
Subject: Re: uncertainty of PD/Jann
this converstion with Ray and |Jan has hit a mark; the need to be
HEARDand
UNDERSTOOD
so often with family and evesn or especially our doctors I get the
impression I m just a nuisance and SHOULD TRY HARDER . well it takes
effort
just to get up and dresed and move throught the day without whinning a
nd
complaining . everything hurts , Im dizzy tired dont sleep . swollen
legs,
but there is no visible outward sign of distress so I must just be
malingering. and very worried about the future - it only gsets worse
progressivse , dibilitating , dependendcy, dementia, depression.
actually the only information on treatments , coping , and sides
effects has
come from this and other web sights, thank you all . My doctor just
hands a presciption and says see you next year . Edema weight loss
pain
stifness insomnia - if I dont mention i t he doesnt and I dont think
takes
it seriously
sory to rant so but this morning I just had to
riginal Message -----
From: "Jann Bell" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, May 06, 2005 4:19 PM
Subject: Re: uncertainty of PD/Jann
> Any coping mechanisms in this household come from me. My Dad's
primarily
> attitude is one of denial. I know that the listserv for caregivers
is the
> preferable venue for venting and I am a member. I was just trying to
get
> some feedback on the anti-depressant recently prescribled for Dad
from
> people who are PD people, not caregivers. After reading the listserv
I
> truly believe in and trust the input from people, who, like
yourself, are
> actually living the PD life and who are not in denial and who are
trying
> to make the best of a terrible situation. Thanks for your input.
Jann,
> caregiver to Dad, Jack, 78 yo
>
> rayilynlee <[log in to unmask]> wrote:Jann,
>
> I tried to explain to the psychologist at the Support Group I
attended
> that
> you just get accustomed to your situation when it changes for the
worse.
> His Rx was for me to count my blessings, have a positive attitude
and
> compare myself with people worse off. This was not helpful to me. I
need
> strategies for coping alone. I probably do feel sorry for myself
from time
> to time, but my big concern is getting from point A to point
B(literally
> without falling) Example, getting my groceries online has been a
great
> strategy.
>
> The hardest thing (I think) about PD is like M.J. Fox described it
as
> being
> in the middle of the street, knowing a truck is coming, but you
don't know
> just when. Although it is true we all face the unknown, we Parkies
do have
> special challenges. It would be nice to be understood.
> Ray
> ----- Original message put: signoff parkinsn
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