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Giao. Thanks for looking for Alessandro. I appreciate your time in this effort. My loss of mobility comes from 2 things PD and polio which I had as a child. Prior to getting PD I walked with a pronounced limp. The PD finished off my walking days after about 10 years of the illness progressing at an average rate. At that time I participated in a Fetal transplant experiment which I received active cells with benefit as well as runaway dyskinesia I then had the DBS of the STN using medtronic units which controlled the dyskinesia. I no longer have (substantial ) freezing or dyskinesia but I am unable to walk distances because my right shoulder has become arthritic from the weight it has held up from use of the walker and dystonia Which I have intermittently in my right arm. I have had each unit replaced twice because they have run out of power. You can see that my case is complicated. I think that I can say that DBS is a palliative treatment. It does not cure the PD or stop its progress. It is helpful though and I think that I would be significantly more disabled without it. I hope that I have answered your questions. Charlie pppppppppp wrote: >Dear Charles >I think to be able to find your Italian friend, >give me some days to ask around.... >I was in the utmost astonishment when I heard > about your lost of mobility..... >Can I ask you about? Where was you implanted? >in the sub thalamic nucleus? >did you use medtronic? >which are your DBS parameters now? >my are: 2,5 V , 60 ms, 130 Hz both left and righ units >in 1999 the DBS was at first step... may have you planned >to reconsider to repat the neuro stimulation.? >in Italy I think until now there are about 1000 >people with DBS.But compared with 1999 >the selection now is very more strict. >Only people in good health are considerated to do DBS >( of course the have to suffer Park disease!) >but they haven't depression, test neurological has to be >perfect, cardio vascolar problem. >aren't permited, a good RSM it is obliged, age max for DBS are 70 y.o >A problem is there not not ufficial guide lines for DBS. >There are neuro-chirurgical teams who work in the sub thalamic >others in the pallidus, other in the... >some team implants 4 elettro-catheteres.... so is not easy to do >the better choose... >Before DBS I took 10 sinemet 25/100 with 10 Comtan + Mirapexin 2 mg >now I have reduced it at 5 sinemet + Mirapexin 1 mg. >I hope don't mind you with my questions and >forgive my english not so good. >regards >gio > > >--------------------------------- > >---------------------------------------------------------------------- >To sign-off Parkinsn send a message to: mailto:[log in to unmask] >In the body of the message put: signoff parkinsn >Yahoo! Messenger: chiamate gratuite in tutto il mondo > > > > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn