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Rayilyn,

I know Mike personally and he is a great guy and assure you Franks staff is
mistaken.  I have forwarded this thread to mike and I'm sure he will cotact
you to discuss.

This man is a great asset to  the fight for a cure and I for one are glad he
is on our side.

Michelle

-----Original Message-----
From: Parkinson's Information Exchange Network
[mailto:[log in to unmask]] On Behalf Of rayilynlee
Sent: Saturday, May 28, 2005 11:16 AM
To: [log in to unmask]
Subject: Re: Trent Franks misuses PAN

Mackenzie, thanks for the  info.  Christy Hahn at PAN said there was a Mike
O'Leary from PAN who has been in touch with Franks office.  I got the Leary
part from Ross. Will also go to the site. thanks, Ray
----- Original Message -----
From: "mackenzie" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, May 27, 2005 4:30 PM
Subject: Re: Trent Franks misuses PAN


> hi rayilyn,
>
> i just took a look at PAN's website and there is no
> Michael O'Leary listed in the staff section - don't
> know what that means, but in case you haven't already
> received contact info for PAN, it is:
>
> [log in to unmask], or
>
> 800-850-4726 or 202-842-4101
>
> mackenzie
>
> --- rayilynlee <[log in to unmask]> wrote:
>> Mystery is solved.  The facts:
>>
>> Yesterday I called my representative Republican
>> Trent Franks to ask him why he voted "no" on HR 810
>>
>> I didn't get to speak to him, but to one of his
>> aides who asked me if I  knew about PAN.
>>
>> I was really, really mad and yelled or I should say
>> squawked at  him
>> Does this sound like me?
>>
>> He proceeded to tell me that "Leary" at PAN told
>> them there were better alternatives, giving the
>> impression that PAN opposed this bill.  By this time
>> I was having chest pains and had to hang up.
>>
>> I emailed Franks asking for the name of this person
>> at PAN.  So far there has been no reply.
>>
>> I got my calm and nerve back today and called the
>> office again.  I was told by another aide that it
>> was Michael O'Leary at PAN and that they had
>> discussed the issue with him, but (with my
>> prompting) opposed the bill on moral grounds.
>>
>> Now it is one thing to oppose something on moral
>> grounds, but quite another to misrepresent the views
>> of a patient's advocacy group. which his office did.
>>  My voice is so bad I probably sounded  like a drunk
>> or the village idiot and I think this young whipper
>> snapper mis-underestimated (Bush language) my
>> intelligence.
>>
>> I do think PAN and Michael O'Leary should know about
>> this.  It is so difficult to fight both this disease
>> and these liars.
>>
>> www.house.gov/franks or phone 202-225-4576 to
>> contact Franks.  Don't know how to get ahold of PAN
>> but have emailed Christy.
>>
>>
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>> Ray
>>
>
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