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Michelle is absolutely right. Mike O'Leary has spent a great deal of time in face to face discussions with Franks to get his support for escr as proposed in HR810, but Franks remains opposed to embryonic stem cell research in any form. Mike has found common ground with Franks on other issues of importance to PWP, and works with Franks where he can.

As Michelle said, the staffer was misinformed.

Michelle Lane <[log in to unmask]> wrote:
Rayilyn,

I know Mike personally and he is a great guy and assure you Franks staff is
mistaken. I have forwarded this thread to mike and I'm sure he will cotact
you to discuss.

This man is a great asset to the fight for a cure and I for one are glad he
is on our side.

Michelle

-----Original Message-----
From: Parkinson's Information Exchange Network
[mailto:[log in to unmask]] On Behalf Of rayilynlee
Sent: Saturday, May 28, 2005 11:16 AM
To: [log in to unmask]
Subject: Re: Trent Franks misuses PAN

Mackenzie, thanks for the info. Christy Hahn at PAN said there was a Mike
O'Leary from PAN who has been in touch with Franks office. I got the Leary
part from Ross. Will also go to the site. thanks, Ray
----- Original Message -----
From: "mackenzie"
To:

Sent: Friday, May 27, 2005 4:30 PM
Subject: Re: Trent Franks misuses PAN


> hi rayilyn,
>
> i just took a look at PAN's website and there is no
> Michael O'Leary listed in the staff section - don't
> know what that means, but in case you haven't already
> received contact info for PAN, it is:
>
> [log in to unmask], or
>
> 800-850-4726 or 202-842-4101
>
> mackenzie
>
> --- rayilynlee wrote:
>> Mystery is solved. The facts:
>>
>> Yesterday I called my representative Republican
>> Trent Franks to ask him why he voted "no" on HR 810
>>
>> I didn't get to speak to him, but to one of his
>> aides who asked me if I knew about PAN.
>>
>> I was really, really mad and yelled or I should say
>> squawked at him
>> Does this sound like me?
>>
>> He proceeded to tell me that "Leary" at PAN told
>> them there were better alternatives, giving the
>> impression that PAN opposed this bill. By this time
>> I was having chest pains and had to hang up.
>>
>> I emailed Franks asking for the name of this person
>> at PAN. So far there has been no reply.
>>
>> I got my calm and nerve back today and called the
>> office again. I was told by another aide that it
>> was Michael O'Leary at PAN and that they had
>> discussed the issue with him, but (with my
>> prompting) opposed the bill on moral grounds.
>>
>> Now it is one thing to oppose something on moral
>> grounds, but quite another to misrepresent the views
>> of a patient's advocacy group. which his office did.
>> My voice is so bad I probably sounded like a drunk
>> or the village idiot and I think this young whipper
>> snapper mis-underestimated (Bush language) my
>> intelligence.
>>
>> I do think PAN and Michael O'Leary should know about
>> this. It is so difficult to fight both this disease
>> and these liars.
>>
>> www.house.gov/franks or phone 202-225-4576 to
>> contact Franks. Don't know how to get ahold of PAN
>> but have emailed Christy.
>>
>>
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>> Ray
>>
>
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