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And I thought 94 was bad! >From: "Claudia J. Goldberg" <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: Re: Ozzy Osbourne & PD/Claudia >Date: Wed, 27 Jul 2005 08:06:31 -0700 > >Ray, thank you for your generous spirit. > >I haven't been on this list for very long so I don't know the historical >threads of most of the posters. But I see your posts regularly and they >are >always interesting and knowledgable. I really appreciate the info you >provide all of us. > >It seems the subject of chemicals in the environment being a potential >cause >of PD comes up more often and in respected and credible sources. > >I live in Southern California (15+ yrs) but spent all of my childhood and >part of my early adulthood in a farming community in Kansas. Between our >house and the closest neighbor there was a huge vegetable garden (it was >commercial and the owner was what we called a "truck farmer" meaning he >took >the harvested vegetables to an open air market and sold them from the back >of his truck). > >All that was before the time they learned that DDT was harmful to one's >health. I can recall many, many times when they dusted the crops with DDT >so heavily it left a white powder on the plants and the wind carried much >of >it to our yard. If I think about it now I can still recall the awful >smell >and taste it had when I breathed. > >Now, of course, I wonder if it had an impact on my PD. I am 60 now and was >diagnosed when I was 54. > >Ironically the researchers are also following the possibility that >environmental chemicals may be the cause of Sarcoidosis. > >If it proves true, then I must have gotten a "double whamee". No one else >in my immediate family have been diagnosed with either disease. But my >father had a serious lung condition (not related to smoking) and when he >passed away the death certificate simply said the cause of death was >chronic >obstructive pulmonary disease. My oldest brother (2 yrs younger than me) >had serious asthma and other lung problems all his life. At age 56 he died >suddenly of a massive heart attack. The dr. thought the strain of asthma >and related breathing disorders may have weakened his heart along with his >lungs. > >I have a sister a couple of years older than me who has no lung problems >but >she was a very "girly girl" when she was a child and spent most of her time >inside the house with my mother and was not exposed to the DDT to the >extent >my brother, father and I were. I have two brothers who are much younger >than me and both have had minor asthmatic bouts but by the time they were >born DDT had been banned. > >Sort of makes you think, doesn't it. > >In addition to the Sinemet I take Requip. I don't know if it is one of the >agonists that have caused PDers to gamble. But I may try that out as an >excuse to my husband for my desire to trek to Las Vegas every few months. >:-) > >Hope all have a wonderful day. It is supposed to hit triple digits here >AGAIN! It was 118 one day last week. I don't want to hear about how it's >not so bad because it's a "dry heat"..118 deg. is 118 deg.! > >Regards, > >Claudia >----- Original Message ----- >From: "rayilynlee" <[log in to unmask]> >To: <[log in to unmask]> >Sent: Tuesday, July 26, 2005 12:33 PM >Subject: Re: Ozzy Osbourne & PD/Claudia > > >>Claudia, I for one am interested in your condition. You deserve to >>complain as much as you like. It is just another reminder that PD is not >>the >>only disease one can get. I know when I survived cancer I thought I was >>'home free" Ha! Ray, wondering when the next shoe will drop. >>----- Original Message ----- >>From: "Claudia J. Goldberg" <[log in to unmask]> >>To: <[log in to unmask]> >>Sent: Monday, July 25, 2005 4:16 AM >>Subject: Re: Ozzy Osbourne & PD >> >> >>>For what it is worth, I once had a neuro-surgeon tell me hat M. Ali did >>>not >>>have PD, but rather he had a disease called Shy Drager's Disease and ir >>>was >>>indeed caused by too many blows to the head. Although I got the >>>impression >>>that other's can get it without having had all the blows. In fact, for a >>>brief time they thought I had it. One of the diagnostic symptoms is an >>>extreme drop in blood pressure, especially when first standing up. I do >>>have PD but the symptoms of Shy Drager turned out to be caused by another >>>disease I had but had not yet been diagnosed. It was sarcoidosis. It's >>>a >>>fairly rare auto immune disease that nearly always impacts the lungs then >>>can go to any organ in the body. For some they have one episode and then >>>it >>>never returns. For others it is either intermitent or chronic. The >>>sarcoidosis was attacking my bone marrow and filling the space with small >>>tumors (granulomas) thus leaving no room for me to produce new red blood >>>cells. That caused the extreme low BP and also serious anemia requiring >>>blood transfusions. It is always hard for me to know if any new symptom >>>I >>>have is PD related or the sarcoid rearing it's ugly head. The sarcoid >>>also >>>precludes me from participating in clinical trials. They don't want you >>>if >>>you have more than one disease. >>> >>>I'm sure this is much more info on sarcoidosis that any of you are >>>interested in, but it's one of those sleepless nights and I allowed >>>myself >>>to blabber on about a subject not related to PD. Sorry, I'll try to have >>>more self control in the future. >>> >>>I wish you all peace of mind, the serenity to accept your condition and >>>the >>>ability to laugh at the arrows life shoots at us. >>> >>>In the laugh area, a while back there was a country singer who had a song >>>called "What Really Turns Me On is the Shake". I always thought that >>>should >>>be the PD Anthem! >>> >>>Claudia >>>----- Original Message ----- >>>From: "M.Schild" <[log in to unmask]> >>>To: <[log in to unmask]> >>>Sent: Sunday, July 24, 2005 11:31 PM >>>Subject: Re: Ozzy Osbourne & PD >>> >>> >>>>>Also, what about Muhammad Ali's too many blows >>>>>to the head? >>>> >>>> >>>>I should think. M. Ali has traumatic parkinsonism. >>>>Rotenone is used to induce PD in mice >>>>Maryse >>>> >>>>---------------------------------------------------------------------- >>>>To sign-off Parkinsn send a message to: >>>>mailto:[log in to unmask] >>>>In the body of the message put: signoff parkinsn >>>> >>> >>>---------------------------------------------------------------------- >>>To sign-off Parkinsn send a message to: >>>mailto:[log in to unmask] >>>In the body of the message put: signoff parkinsn >> >>---------------------------------------------------------------------- >>To sign-off Parkinsn send a message to: >>mailto:[log in to unmask] >>In the body of the message put: signoff parkinsn >> > >---------------------------------------------------------------------- >To sign-off Parkinsn send a message to: >mailto:[log in to unmask] >In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn