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I think any temperature that is 90+ degrees is just too hot! :-) Claudia ----- Original Message ----- From: "DAVID LEWIN" <[log in to unmask]> To: <[log in to unmask]> Sent: Thursday, July 28, 2005 3:50 AM Subject: Re: Ozzy Osbourne & PD/Claudia > And I thought 94 was bad! > >>From: "Claudia J. Goldberg" <[log in to unmask]> >>Reply-To: Parkinson's Information Exchange Network >><[log in to unmask]> >>To: [log in to unmask] >>Subject: Re: Ozzy Osbourne & PD/Claudia >>Date: Wed, 27 Jul 2005 08:06:31 -0700 >> >>Ray, thank you for your generous spirit. >> >>I haven't been on this list for very long so I don't know the historical >>threads of most of the posters. But I see your posts regularly and they >>are >>always interesting and knowledgable. I really appreciate the info you >>provide all of us. >> >>It seems the subject of chemicals in the environment being a potential >>cause >>of PD comes up more often and in respected and credible sources. >> >>I live in Southern California (15+ yrs) but spent all of my childhood and >>part of my early adulthood in a farming community in Kansas. Between our >>house and the closest neighbor there was a huge vegetable garden (it was >>commercial and the owner was what we called a "truck farmer" meaning he >>took >>the harvested vegetables to an open air market and sold them from the back >>of his truck). >> >>All that was before the time they learned that DDT was harmful to one's >>health. I can recall many, many times when they dusted the crops with DDT >>so heavily it left a white powder on the plants and the wind carried much >>of >>it to our yard. If I think about it now I can still recall the awful >>smell >>and taste it had when I breathed. >> >>Now, of course, I wonder if it had an impact on my PD. I am 60 now and >>was >>diagnosed when I was 54. >> >>Ironically the researchers are also following the possibility that >>environmental chemicals may be the cause of Sarcoidosis. >> >>If it proves true, then I must have gotten a "double whamee". No one else >>in my immediate family have been diagnosed with either disease. But my >>father had a serious lung condition (not related to smoking) and when he >>passed away the death certificate simply said the cause of death was >>chronic >>obstructive pulmonary disease. My oldest brother (2 yrs younger than me) >>had serious asthma and other lung problems all his life. At age 56 he >>died >>suddenly of a massive heart attack. The dr. thought the strain of asthma >>and related breathing disorders may have weakened his heart along with his >>lungs. >> >>I have a sister a couple of years older than me who has no lung problems >>but >>she was a very "girly girl" when she was a child and spent most of her >>time >>inside the house with my mother and was not exposed to the DDT to the >>extent >>my brother, father and I were. I have two brothers who are much younger >>than me and both have had minor asthmatic bouts but by the time they were >>born DDT had been banned. >> >>Sort of makes you think, doesn't it. >> >>In addition to the Sinemet I take Requip. I don't know if it is one of >>the >>agonists that have caused PDers to gamble. But I may try that out as an >>excuse to my husband for my desire to trek to Las Vegas every few months. >>:-) >> >>Hope all have a wonderful day. It is supposed to hit triple digits here >>AGAIN! It was 118 one day last week. I don't want to hear about how it's >>not so bad because it's a "dry heat"..118 deg. is 118 deg.! >> >>Regards, >> >>Claudia >>----- Original Message ----- >>From: "rayilynlee" <[log in to unmask]> >>To: <[log in to unmask]> >>Sent: Tuesday, July 26, 2005 12:33 PM >>Subject: Re: Ozzy Osbourne & PD/Claudia >> >> >>>Claudia, I for one am interested in your condition. You deserve to >>>complain as much as you like. It is just another reminder that PD is not >>>the >>>only disease one can get. I know when I survived cancer I thought I was >>>'home free" Ha! Ray, wondering when the next shoe will drop. >>>----- Original Message ----- >>>From: "Claudia J. Goldberg" <[log in to unmask]> >>>To: <[log in to unmask]> >>>Sent: Monday, July 25, 2005 4:16 AM >>>Subject: Re: Ozzy Osbourne & PD >>> >>> >>>>For what it is worth, I once had a neuro-surgeon tell me hat M. Ali did >>>>not >>>>have PD, but rather he had a disease called Shy Drager's Disease and ir >>>>was >>>>indeed caused by too many blows to the head. Although I got the >>>>impression >>>>that other's can get it without having had all the blows. In fact, for >>>>a >>>>brief time they thought I had it. One of the diagnostic symptoms is an >>>>extreme drop in blood pressure, especially when first standing up. I do >>>>have PD but the symptoms of Shy Drager turned out to be caused by >>>>another >>>>disease I had but had not yet been diagnosed. It was sarcoidosis. It's >>>>a >>>>fairly rare auto immune disease that nearly always impacts the lungs >>>>then >>>>can go to any organ in the body. For some they have one episode and >>>>then >>>>it >>>>never returns. For others it is either intermitent or chronic. The >>>>sarcoidosis was attacking my bone marrow and filling the space with >>>>small >>>>tumors (granulomas) thus leaving no room for me to produce new red blood >>>>cells. That caused the extreme low BP and also serious anemia requiring >>>>blood transfusions. It is always hard for me to know if any new symptom >>>>I >>>>have is PD related or the sarcoid rearing it's ugly head. The sarcoid >>>>also >>>>precludes me from participating in clinical trials. They don't want you >>>>if >>>>you have more than one disease. >>>> >>>>I'm sure this is much more info on sarcoidosis that any of you are >>>>interested in, but it's one of those sleepless nights and I allowed >>>>myself >>>>to blabber on about a subject not related to PD. Sorry, I'll try to >>>>have >>>>more self control in the future. >>>> >>>>I wish you all peace of mind, the serenity to accept your condition and >>>>the >>>>ability to laugh at the arrows life shoots at us. >>>> >>>>In the laugh area, a while back there was a country singer who had a >>>>song >>>>called "What Really Turns Me On is the Shake". I always thought that >>>>should >>>>be the PD Anthem! >>>> >>>>Claudia >>>>----- Original Message ----- >>>>From: "M.Schild" <[log in to unmask]> >>>>To: <[log in to unmask]> >>>>Sent: Sunday, July 24, 2005 11:31 PM >>>>Subject: Re: Ozzy Osbourne & PD >>>> >>>> >>>>>>Also, what about Muhammad Ali's too many blows >>>>>>to the head? >>>>> >>>>> >>>>>I should think. M. Ali has traumatic parkinsonism. >>>>>Rotenone is used to induce PD in mice >>>>>Maryse >>>>> >>>>>---------------------------------------------------------------------- >>>>>To sign-off Parkinsn send a message to: >>>>>mailto:[log in to unmask] >>>>>In the body of the message put: signoff parkinsn >>>>> >>>> >>>>---------------------------------------------------------------------- >>>>To sign-off Parkinsn send a message to: >>>>mailto:[log in to unmask] >>>>In the body of the message put: signoff parkinsn >>> >>>---------------------------------------------------------------------- >>>To sign-off Parkinsn send a message to: >>>mailto:[log in to unmask] >>>In the body of the message put: signoff parkinsn >>> >> >>---------------------------------------------------------------------- >>To sign-off Parkinsn send a message to: >>mailto:[log in to unmask] >>In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn