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Dear Ray, As one doctor confessed to me, "Despite our reputation for omniscience, we just don't know." >From: rayilynlee <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: Re: Trials >Date: Sun, 14 Aug 2005 12:10:45 -0700 > >After 2 surgeries for arterio-venus fistulas, chemo for cancer to which I >twice became allergic having seizures, and 2 surgeries for it, 2 DBS brain >surgeries, unsatisfactory reactions to PD meds, living alone I am not game >to be a trial participant. I think it is great of one can do this, but it >is almost impossible for me to get to the doctor. It is all I can do to >keep myself above water. I felt I was doing my bit for mankind when I had >my unnecessary 2nd look surgery for cancer and that was around 25 years >ago. >Ray >----- Original Message ----- >From: "Gerry Haines" <[log in to unmask]> >To: <[log in to unmask]> >Sent: Saturday, August 13, 2005 5:53 AM >Subject: Re: How do you cope? > > >>Also, participate in Clinical Trials for PD, my husband has done 10 of >>them >>over the years and some are really difficult to finish, but he has. I >>have >>spoken at many Support Groups and have had people (withPD), come back to >>me and >>tell me for the first time in years, they feel like they are doing >>something >>to fight this disease. My point, do whatever you can, don't let this >>disease >>defeat you, and yes, I don't have it, (as Ray told me), but believe me I >>have >>been through every step of this for 19 years....... >>Gerry >> >>---------------------------------------------------------------------- >>To sign-off Parkinsn send a message to: >>mailto:[log in to unmask] >>In the body of the message put: signoff parkinsn > >---------------------------------------------------------------------- >To sign-off Parkinsn send a message to: >mailto:[log in to unmask] >In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn