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After 2 surgeries for arterio-venus fistulas, chemo for cancer to which I twice became allergic having seizures, and 2 surgeries for it, 2 DBS brain surgeries, unsatisfactory reactions to PD meds, living alone I am not game to be a trial participant. I think it is great of one can do this, but it is almost impossible for me to get to the doctor. It is all I can do to keep myself above water. I felt I was doing my bit for mankind when I had my unnecessary 2nd look surgery for cancer and that was around 25 years ago. Ray ----- Original Message ----- From: "Gerry Haines" <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, August 13, 2005 5:53 AM Subject: Re: How do you cope? > Also, participate in Clinical Trials for PD, my husband has done 10 of > them > over the years and some are really difficult to finish, but he has. I > have > spoken at many Support Groups and have had people (withPD), come back to > me and > tell me for the first time in years, they feel like they are doing > something > to fight this disease. My point, do whatever you can, don't let this > disease > defeat you, and yes, I don't have it, (as Ray told me), but believe me I > have > been through every step of this for 19 years....... > Gerry > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn