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David, at the time (1979-80)the protocol for treatment for ovarian cancer at Good Samaritan Hospital in LA was chemo and a 2nd look surgery. I became allergic to the chemo and the docs said they thought they saw a mass in my abdomen. My surgeon told me he wasn't terribly impressed with the sonograms, but that is how they got me to agree to the surgery. I reasoned if I couldn't take chemo anymore anyway, what good would it be to look besides you never get over wondering if it has come back I didn't have the nerve then to go against the protocol. Don't know what the treatment is today. Naturally I was glad when they didn't find any more cancer cells in my abdomen, but I immediately gained another 10 lbs (10 after the 1st surgery) which I have never been able to lose. I had been told not to diet and perhaps have equated being overweight as not dying. Ray ----- Original Message ----- From: "DAVID LEWIN" <[log in to unmask]> To: <[log in to unmask]> Sent: Monday, August 15, 2005 6:23 AM Subject: Re: 2nd unnecessary surgery? > Dear Ray, > As one doctor confessed to me, "Despite our reputation for omniscience, we > just don't know." > >>From: rayilynlee <[log in to unmask]> >>Reply-To: Parkinson's Information Exchange Network >><[log in to unmask]> >>To: [log in to unmask] >>Subject: Re: Trials >>Date: Sun, 14 Aug 2005 12:10:45 -0700 >> >>After 2 surgeries for arterio-venus fistulas, chemo for cancer to which I >>twice became allergic having seizures, and 2 surgeries for it, 2 DBS brain >>surgeries, unsatisfactory reactions to PD meds, living alone I am not >>game >>to be a trial participant. I think it is great of one can do this, but it >>is almost impossible for me to get to the doctor. It is all I can do to >>keep myself above water. I felt I was doing my bit for mankind when I had >>my unnecessary 2nd look surgery for cancer and that was around 25 years >>ago. >>Ray >>----- Original Message ----- >>From: "Gerry Haines" <[log in to unmask]> >>To: <[log in to unmask]> >>Sent: Saturday, August 13, 2005 5:53 AM >>Subject: Re: How do you cope? >> >> >>>Also, participate in Clinical Trials for PD, my husband has done 10 of >>>them >>>over the years and some are really difficult to finish, but he has. I >>>have >>>spoken at many Support Groups and have had people (withPD), come back to >>>me and >>>tell me for the first time in years, they feel like they are doing >>>something >>>to fight this disease. My point, do whatever you can, don't let this >>>disease >>>defeat you, and yes, I don't have it, (as Ray told me), but believe me I >>>have >>>been through every step of this for 19 years....... >>>Gerry >>> >>>---------------------------------------------------------------------- >>>To sign-off Parkinsn send a message to: >>>mailto:[log in to unmask] >>>In the body of the message put: signoff parkinsn >> >>---------------------------------------------------------------------- >>To sign-off Parkinsn send a message to: >>mailto:[log in to unmask] >>In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn