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This is a matter of preference of course but even after at least 20 years of
pd there are times when people cannot tell that I have the disease.  I find
that if they are told, I am from then on treated completely differently by
that person.  It's quite easy to observe this.  I don't like to let this
disease define who I am.
\Randy


----- Original Message -----
From: "David Jackson" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, September 11, 2005 8:13 AM
Subject: Re: Newby


>I am not single but it has been a struggle for me to tell people I
> have been diagnosed with Parkinsons.  Friends who are close to others
> with PD probably knew it before I did.  Distant family were the
> hardest and I waited until it was obvious (my voice disappearing as we
> spoke on the phone; unable to carry a fluid conversation and come up
> with words)  When that happened with my brother I told him and then
> hurried to tell our children and others before they heard it from
> someone else.  Now I am realizing that it is important to share this
> before it becomes an unspoken subject.
> Some are as curious as I am about the progression of PD and talking
> about it helps me to put it in prospective and think about my
> relationships and where PD is going to fit in.  Glad you are on-line
> with us.  Karin
>
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