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That's an interesting point, Randy. I'm afraid the cat's already out of the bag, offstage anyway. Most of my musician friends are aware that I have PD. So far, only one, the guitarist I work with, has admitted that he hears a difference in my playing. But as far as the public goes, would you suggest that I not make a public announcement about my PD until I actually retire from playing music in public? I do publicly support PD related issues, but have stopped short of organizing benefit shows for research, etc. I feel like MJ Fox might have, back when he was still doing TV and keeping his illness from everyone. After 20 yrs, I'd like to ask you what point you're at with the medication, etc. Do you take a lot of sinemet? What else do you do to maintain and take care of yourself? Thank you. Rick ----- Original Message ----- From: "Randy L Vinecore" <[log in to unmask]> To: <[log in to unmask]> Sent: Monday, September 12, 2005 9:49 AM Subject: Re: Newby > This is a matter of preference of course but even after at least 20 > years of > pd there are times when people cannot tell that I have the disease. > I find > that if they are told, I am from then on treated completely > differently by > that person. It's quite easy to observe this. I don't like to let > this > disease define who I am. > \Randy > > > ----- Original Message ----- > From: "David Jackson" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Sunday, September 11, 2005 8:13 AM > Subject: Re: Newby > > >>I am not single but it has been a struggle for me to tell people I >> have been diagnosed with Parkinsons. Friends who are close to >> others >> with PD probably knew it before I did. Distant family were the >> hardest and I waited until it was obvious (my voice disappearing as >> we >> spoke on the phone; unable to carry a fluid conversation and come >> up >> with words) When that happened with my brother I told him and then >> hurried to tell our children and others before they heard it from >> someone else. Now I am realizing that it is important to share >> this >> before it becomes an unspoken subject. >> Some are as curious as I am about the progression of PD and talking >> about it helps me to put it in prospective and think about my >> relationships and where PD is going to fit in. Glad you are >> on-line >> with us. Karin >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn