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Dear Joe,  So sorry you are having to go through these problems.  Life is hard enough without PD.  Have you looked into pdrecovery.org?  You can download it free.  She has two books, one on the medications and one on recovery.  They are both eye opening.  They describe my husband to a T, where his neuro doctors didn't seem to have a clue.  She uses Asian medicine, and I don't know anything about that, but at least she gives you understanding of the disease and hope, which the neurologists don't.  I have talked to a lady on the internet that is recovering using these methods, and she has talked to someone who has recovered.  When the MDs hear about it they say "what are you doing, you are doing so well."  Then when they find out they say you must have been misdianosed, after they have been treating you for 6 years for PD.  You don't recover from PD.  Not with thier meds you don't.  You just get worse.
These books are free, she is not trying to make any money off you so there doesn't seem to be any scam here.  We plan to do it as soon as we wean my husband off his meds.

Paula

Joe Ryan <[log in to unmask]> wrote:
Thanks for the welcomes , I'm glad I found all of you on this list. To answer some of the questions: I'm 61yo and have lived in Port Townsend WA for 25 yrs. My diagnosis "evolved" over several months when a friend who is a neurologist noticed how slowly I was moving. He thought I might be having Parkinson like side effects to Celexa which I had been taking for about a year to help me get over my depression following the death of my wife Lori. She died almost 3 years ago after a long battle with breast cancer.
Stopping the Celexa however did nothing to improve the bradykinesia, and about a month later another friend noticed a very slight tremor in my left hand. To make a long story short I recognized more PD symptoms which I had been ignoring or attributing to "old age" or depression. They were not getting any better months after stopping the Celexa.
My attending physician noted my gait and lack of expression and made the referral for a neurological work up.
In the meantime I was all over the internet in a not very organized search for information and asking questions of my neurologist. By the time he was offering to prescribe meds I was wanting to wait because I was concerned about side effects. That was fine with him. Days later I saw my reflection in a large window and I was shocked. My arms were just hanging by my sides as I walked and my face looked disconnected from "me". For maybe a second I thought "I'm not here". I started Requip 2 days later which was a little more than a week ago.
I found this list because it was mentioned in an article on a US government website which had high praise for it.
I am bewildered by the number of associations, foundations, networks etc. Why so many?
I haven't told family members about the PD yet (they are back in New York and Michigan) and I anticipate depending on my friends for support. I wonder how that has worked out for other single list members?


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