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Dear Mary Ann,
Thank you for your good wishes.  At the time I had to call Adult Protective
Services, I had to use a chair lift to get out of a chair.  Just taking a
bath was a single goal for the day.  Now that I am out of that emotionally
destructive atmosphere, I get out of chairs all by myself, take a bath, and
go to several stores shopping all in the same day.  Obviously, emotional
factors take their toll in PD.  A good companion is a life safer.   David


>From: Mary Ann Ryan <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange Network
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: Newby/alone with PD
>Date: Tue, 13 Sep 2005 07:59:29 -0400
>
>David wrote:
>
>.  I was 55 at the time of my
>>diagnosis.  Things got so bad that finally I had to call Adult Protective
>>Services.  APS insisted that I be allowed to hire an aide to come in and
>>help me as needed.
>
>Oh, David, what a horrible story!  Your post made me feel very sad for you
>and very angry at your wife.
>
>Not all families abandon their disabled loved ones.  Jamie has had PD since
>he was 40.  Our children have always loved and respected their father - in
>fact, they cannot recall a time when their father was well.  Their Dad's PD
>is just part of their lives - something to be accepted.
>
>Jamie and I have found accommodations to his disease at every turn.  Its
>gradual progression has allowed us to gently slip into the next phase
>without too much difficulty.  There are plenty of care givers on this list
>who have done the same and continue to love and support their PWP.  It is
>sad to see that not all spouses feel the same.
>----------
>God bless
>Mary Ann (CG Jamie 65/25 with PD)
>
>P.S.  I'm very happy to read that you have found happiness with your
>companion.  Good for you!!
>
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