 |
 |
CAPS CALL UR GASTROENTEROLOGIST, SURGEON, NEURO, AND PRIMARY DOC, LICENSED REGISTERED CARDIAC DIETITIAN . THEY ARE MORE INTUNE TO PROPER DIET FOR THE HEART AND NEURO SYSTEM. A SPEECH LANGUAGE PATHOLOGIST MAY HAVE SOME SUGGESTIONS IF SWALLOWING IS A PROBLEM. BLOOD WORK HAS TO BE PROPER. FRIED FOODS ARE BAD NEWS. I DON'T KNOW UR SWALLOWING OR MOVEMENT LIMITATIONS, BUT I DRINK THE FOLLOWING: ENSURE PLUS , ENSURE (ME), OR BOOST( IMPACTS ME) BROTH ROOM TEMP -SODIUM INTAKE GATORADE ? WATER WITH PLAIN LEMON JUICE NOT CONCENTRATE HEART OR GASTRIC OR DIABETIC PROBLEMS? WHAT DID THE HOSPITAL TELL U TO EAT? HOW DO U PROTECT UR TEETH AND MOUTH FROM INFECTION ? STIFFNESS? A LIST OF SITTING (?) EXERCISES THAT CAN BE DONE SAFELY DURING THIS TIME PERIOD FROM A PHYSICAL THERAPIST AND REHAB DOCTOR. SOMETIMES IT COMES DOWN TO SOMEONE ROTATING ANOTHERS WRIST IF THEY AREN'T ALLOWED TO DO IT THEMSELVES. INSURANCE- MEDICARE AND OTHERS - COVER ENSURE IF THAT IS UR ONLY MEANS OF NUTRITION MEDICAID - COVERS IT WITH DOCUMENTATION COMMON PRACTICE. UNEDITED NANCY rayilynlee wrote: > Diane, I'm glad your sleep apnea was cured after such an ordeal. I can't > lose weight since my premature menopause 26 years ago, so am not much > help. > I'm assuming your liquid diet is something "nutritious" like Ensure. > What > you need is a cheeseburger and fries - maybe there is a way to grind > them up > so you can get some fattening food. > > Nope, I haven't done the jaw surgery thing yet. There is so much to > look > forward to. Sometimes it seems we PWP get everything. Hope somebody on > this list can help > Ray > ----- Original Message ----- > From: "Diane Nicolaou" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Saturday, September 17, 2005 2:25 PM > Subject: Suggestions Welcome > > >> Hi. >> As in other times of difficulty, my friends on "The List" seem to be a >> good >> place to turn. I'll try to be brief. >> I am 52 Years old - P.D. for 5-7 years. (Don Mckinley you can jumo in >> with >> your two cents worth anytime as I know you've had years of dealing with >> this >> disease). >> This spring I had jaw surg for severe Sleep apnea-HT:5' 4" & WT (when I >> started this I was 140 now weigh 107) so as they say I was not typical >> body build >> for sleep apnea but it was so severe I was extremely sleep >> deprived. My >> Neuro, whom I trust had me come there (U of Mich) and have the surg. I >> was >> wired shut 4-5 weeks then an infection (abcess on my gums) caused >> them to >> take >> out one of the many plates they put in my jaw (it was a brutal 7 1/2 hr >> surg.). >> Over the next two months a bone in my jaw cracked > >> and shifted and back to >> surgery a week ago to put in reinforcement and I signed a consent for a >> bone >> graft from my hip but it ended up not necessary. WHEW!!! Here's my >> problem. >> I had already los 30 pounds and now I'm back on a liquid diet, can >> only >> eat >> what goes thru a straw as my jaw is wired shut 5-6 weeks total. I >> am too >> thin now and don't want to lose any more weight but besides that I have >> to crush >> up my pills > ARE U USING A PILL CRUSHER ? THEY PULVERIZE PILLS. MEDICDRUG.COM MAY HAVE THEM. >> to get them in and they don't last long that way. (I'm on >> sinemet 25/100, CR & Regular, Mirapex, which are the main concern I >> also >> take >> Zoloff, Clonapan and at night. Now on Clindomycin every 6 hours which >> keeps me >> in a state of nausea but very important and I mase take it so I do. > ASK UR PHARMACIST AND DOC CHECK DRUG INTERACTIONS. ARE U FOLLOWING THE DIRECTIONS? >> I >> don't >> mean to whine so I'll quit for now but any suggetions on what to >> eat, I >> mean >> drink, and what would help my meds be more effective (or last longer) >> would >> be welcome. Anyone with experience with jaw surgery? >> Oh, by the way I sleep like a kitten, It really did cure my sleep >> apnea. >> Diane >> in Michigan >> >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn