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My first support group sent me home for another 3 years without "needing it."  In fact, I was mortified by a couple present where the wife was very advanced.  No way was that my future!   Then I kept filling my head with experiences and stories from others and online untilI just had to share them.

I returned to the support group and smiled at the lady in the wheelchair that one day might be me.  She smiled back; then we chatted.  She was a bright person and had much to say.  Then I came back again and talked with a young onset PWP who was so glad I had returned.   I was needed as much as I needed them.  Six years later, I've lead that support group the last five years and started a young onset one 2 years ago.

The support group meeting is a formality - business, program, and a few refreshments.  It's the networking outside the meetings that keep us all so close.  We call, visit each other, and plan activities.  And I have sat   with two of the ladies through hospice and death from Parkinson's Plus.    And I consoled a gentleman's family when he had a fall that put him out of commission. And I could go on and on with stories I just couldn't see myself ever being a part of.

 Many are thirsty for fellowship from those who "understand," or at least are trying.  And it empowers me to take charge of my condition and my destination.  And it helps me to focus on helping others, not just me.

I suggest you return to a support group locally.  If it has needs or problems, see how you can help.  Make it what you came there searching for in the first place.  I promise it will lift you up.

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Peggy