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I was diagnosed 15 years ago and can remember experiencing symptions at least 8 years before that. I guess thats adds up to more than 20. Would you have guessed I majored in math? The most important thing is to maintain the best physical condition possiblle. Taught tae kwon do for 15 years during this period. Hiked and backpacked every weekend ( rain or shine). Have particapated in at least 6 research studies at OHSU. My wife is the best cook in the nation. Nutrition is important. At the same time it is very easy to get injured and simply lay around for months. I've tried that a couple of times also. I am now on neurontin 300*3 omeprazole 20 * 1 selegiline 5 * 1 sinemet 25/100 * 4 mirapex .5 * 3 celebrex 100 * 2 zyrtec 10 * 1 (as needed) trazadone 50 * 1 ginko biloba 60 * 1 fish oil 1000 * 2 vit centrum a to zinc .5 * 1 wine glass * 2 coffee cup * 3 chocolate. I am coming off an injury (squished disc) and according to my Omron pedometer i am now back up to an average of 22000 steps aday. I listen to books on tape a lot while walking. I have developed moderate dyskinesias and am off about 4 hr a day. My off periods are not as pronounced as some. Dr Nutt has suggested that upping my sinemet dose to 5 a day would be worth considering. I am trying every 5.5 hr which is a heck of a funny schedule. \Randy From: "Rick McGirr" <[log in to unmask]> To: <[log in to unmask]> Sent: Tuesday, September 13, 2005 7:44 AM Subject: Re: Newby/Randy > That's an interesting point, Randy. I'm afraid the cat's already out > of the bag, offstage anyway. Most of my musician friends are aware > that I have PD. So far, only one, the guitarist I work with, has > admitted that he hears a difference in my playing. But as far as the > public goes, would you suggest that I not make a public announcement > about my PD until I actually retire from playing music in public? I > do publicly support PD related issues, but have stopped short of > organizing benefit shows for research, etc. I feel like MJ Fox might > have, back when he was still doing TV and keeping his illness from > everyone. > > After 20 yrs, I'd like to ask you what point you're at with the > medication, etc. Do you take a lot of sinemet? What else do you do > to maintain and take care of yourself? > > Thank you. > Rick > > ----- Original Message ----- > From: "Randy L Vinecore" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Monday, September 12, 2005 9:49 AM > Subject: Re: Newby > > >> This is a matter of preference of course but even after at least 20 >> years of >> pd there are times when people cannot tell that I have the disease. >> I find >> that if they are told, I am from then on treated completely >> differently by >> that person. It's quite easy to observe this. I don't like to let >> this >> disease define who I am. >> \Randy >> >> >> ----- Original Message ----- >> From: "David Jackson" <[log in to unmask]> >> To: <[log in to unmask]> >> Sent: Sunday, September 11, 2005 8:13 AM >> Subject: Re: Newby >> >> >>>I am not single but it has been a struggle for me to tell people I >>> have been diagnosed with Parkinsons. Friends who are close to >>> others >>> with PD probably knew it before I did. Distant family were the >>> hardest and I waited until it was obvious (my voice disappearing as >>> we >>> spoke on the phone; unable to carry a fluid conversation and come >>> up >>> with words) When that happened with my brother I told him and then >>> hurried to tell our children and others before they heard it from >>> someone else. Now I am realizing that it is important to share >>> this >>> before it becomes an unspoken subject. >>> Some are as curious as I am about the progression of PD and talking >>> about it helps me to put it in prospective and think about my >>> relationships and where PD is going to fit in. Glad you are >>> on-line >>> with us. Karin >>> >>> ---------------------------------------------------------------------- >>> To sign-off Parkinsn send a message to: >>> mailto:[log in to unmask] >>> In the body of the message put: signoff parkinsn >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn > In the body of the message put: signoff parkinsn