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Rick, the first part is where you have an iron halo put on your head to hold
it still while they drill hole/s in your skull while you are awake and put a
bundle of 4 electrodes the size of a hair  in each hole down to the
subthalmic nucleus of your brain which  feels no pain. They briefly knock
you out to sew up your scalp.

The 2nd part is where they knock you out and put the Medtronic battery
stimulators in your chest.  They have leads to your brain electrodes, put
there during 1st procedure,  go under your scalp and around your neck to
chest battery stimulators.In a few days they are turned on sending
electrical impulses to the electrodes in your brain.  You may have several
fine tunings or programmings to get the maximum benefit at lowest frequency
so batteries won't wear out too fast.  Average battery life is 5 to 7 years,
then you have to have them replaced.

Most of the infections I have heard of (I was briefly on DBS List before my
DBSs, but got kicked off for arguing with the List Owner who was claiming
EVERYONE with PD should have DBS even though he had brain infection) are
brain infections, but it could be poor placement of electrodes.which is what
I think happened to one PIEN List friend's  mother. Also, she flew off the
table being programmed.  The folks at Kaiser weren't too good.

I guess Scripps La Jolla CA where I had mine done was a good place.  It's
supposed to be, but you never know.  I did have to have my left brain
electrodes repositioned.  Some teams do phases 1 and 2 at the same tine,
others separate them so they can monitor trouble as they go.   I had 4
separate  procedures because of the redo.  Some do one side at a time.

I can't tell either where Carol's infection is/was. although it  sounds like
it was with the battery stimulators in the chest , not the electrodes in the
brain.   She can probably  clarify this for you.However, I guarantee you it
is a daunting experience to say the least.
Ray
----- Original Message -----
From: "Rick McGirr" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, September 20, 2005 7:07 AM
Subject: Re: RE"DBS SURGERY


> You poor dear!  Do you yet have a working DBS system?  Are you going
> through with the whole thing, or have you and your doctors decided
> against?  It must be tough to go through so much unnecessary 'stuff'.
>
> I'm not sure I get it... Which part of the proceedure was the part
> that caused the infection?  Did you have separate surgeries for the
> stimulator and the battery?
>
> Hang in there, Carol.
>
> Enjoy Fall!
> Rick McGirr
> Email: [log in to unmask]
>
> ----- Original Message -----
> From: "Winnie Carolgray" <[log in to unmask]>
> To: <[log in to unmask]>
> Sent: Monday, September 19, 2005 6:38 PM
> Subject: RE"DBS SURGERY
>
>
>> let me re introduce myself.     I am carol Gray  and I have had PD
>> for 28
>> years.  I have
>> been  trying  to g et    o  ver     my DBS  SURGERY.       I had my
>> original
>> surgery  last
>> September , my adult children were aginst me  having   the surgery .
>> then  I had the surgery for implanting  my batteries. I  had  to
>> have more
>> surgery
>> in December because I developed staph infection. He took the
>> stimulator  out
>> and debrided it and I  stayed in the hospital for three  weeks.upon
>> returning to the
>> doctor  He said that it was still infected and that he would have
>> to
>> take it
>> out  Back to the hospital in January t9   returned to  hospital to
>> have the
>> stimlator
>> I stayed in the hospital fof  two weeks.   The surgeon had  to make
>> another
>> surgery  to remove the magnets and their leads   So that's  wjhat I
>> have
>> been
>> up to this year----------------what about you?
>>
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>>
>
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