Hi Ray,
Sorry to hear about your "turn offs." Hand held magnets, can you not get the newer version Ray? The ARC (access review controller) is pretty easy to use ie check if you're on or off. Early days after neurostimulators were implanted I took my ARC everywhere. Then realised after some time I hadn't actually used it.
Tonight I returned from an overseas trip and realised I didn't have it with me just now when I started writing this... not such a good idea travelling without it I'm guessing!
Just a quick warning to any fellow DBSers, security told me it was alright to go through the normal security system. I stood my ground and said no but only because I've been warned and was then given a quick pat down which has been the case every other time.
Cheers,
Lee
rayilynlee <[log in to unmask]> wrote:
If you have had DBS you may face accidental turn offs like I have.
Year-and-a-half ago I had my magnet in my purse that I put around my neck to free my hands for walkers. I got accidentally turned off when I hugged someone and the purse with the magnet came in contact with my right implant.
Last Friday while wearing my "Life Alert" around my neck, I think my purse pressed on the Life Alert and my right implant. I got turned off. Called the neuros office and he wasn't there and nobody called me back. Later that night I got my magnet, put it
on my implant, and turned myself on. Monday I called Life Alert and of course they didn't know anything about DBS implants, no one does, but told me they had people with heart pacemakers wear the Life Alert on their wrists.
Someone finally called me the following Monday and told me to make an appt which I did for the next day. When I was telling Kathy, my helper what had happened (I sort of demonstrated) I got turned off again. When we got to doctors we found out he was at a different office. I had a horrible time but managed to get myself turned on again last night.
Saw neuro today at more distant location and implants are OK. He said you really have tp do some detective work to find out what it is that is turning you off, for one patient it was refrigerator door. He said he had one case where one implant was kaput.
Please email and share if you have had this problem. I think it is the Life Alert that is fouling me up, although I have had it for several months around my neck, swimming, etc. Apparently there are any number of things that can interfere with the implant., as the books warn you about them.
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Ray
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