Hilary, boy is that scary. My leads under my scalp feel like great big veins or arteries. I have short, but very thick hair. Can feel but not see them due to double vision. One can only hope that death comes quickly. Ray ----- Original Message ----- From: "Hilary Blue" <[log in to unmask]> To: <[log in to unmask]> Sent: Thursday, September 29, 2005 7:18 AM Subject: Re: DBS/Are you turned off? > It seems that problems deriving from DBS do not end with the surgery > itself.. > > A member of our support group was the third person in this area to have > DBS (on one side only) and the surgery was remarkably successful . Five > yearrs later, she is beginning to have symptoms again and she went to > see the surgeon to find out about having the other side done. The > surgeon, who has meantime done hundreds more DBSs, looked at her scar > and discovered to his horror that the scar tissue was exceeding ly > thin; he could see the wires through the skin, and he has recommended > that this lady have immediate plastic surgery to reinforce the skin. If > she hadnt gone to see him just then , who knows what may hiave happened. > And no-one is sure whether she now can have the second DBS. Who would > think of checking a scar on the top of your head, hidden by hair? > > Hilary Blue > > > > rayilynlee wrote: > >>If you have had DBS you may face accidental turn offs like I have. >> >>Year-and-a-half ago I had my magnet in my purse that I put around my neck >>to free my hands for walkers. I got accidentally turned off when I hugged >>someone and the purse with the magnet came in contact with my right >>implant. >> > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn