It's been 2 months since my diagnosis of PD and the realization that my life is now going to be different. This forum has been a real help on a lot of different levels.
The Washington State Chapter of APDA has put out a DVD which I also found to be helpful as a newly diagnosed PWP.(I love all these initials:). Its focus is on managing the illness and its target audience is newly diagnosed patients. You can get a free copy at
www.waparkinsons.org
Earlier Dee sent me the following remendations which I've also been exploring. Thank you Dee.
Joe
----- Original Message -----
From: "Dolores Buente" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, September 09, 2005 9:26 PM
Subject: Re: Newby
> Welcome J. Ryan,
>
> I was diagnosed in Nov. of 2001, age 58. I found this forum shortly after
> my diagnosis too and it has been a tremendous source of information, comradery
> and support. Have you visited the PAN (Parkinson Action Network) web site
> yet? What about the National Parkinson's Foundation site? The Michael J. Fox
> Foundation site? Do you have the addresses of some of the stem cell
> research foundations? what about the Clinical Trials.gov...website for clinical
> trials being conducted nationwide? There is a wealth of information out there
> that will enable you to become as informed about PD as you wish to become.
> Some of these organizations are very politically active and you can jump right
> in and make your voice heard for such things as increased funding for
> Parkinson's research. You can check out where clinical trials are being conducted
> in your area and you can "Ask the Doctor" when you have questions about your
> PD symptoms and/or treatment.
>
> These are all excellent resources for learning to "Know Thine Enemy",
> participate in the work to promote Parkinson's research, gain knowledge of the
> latest medical advancements in Parkinson's treatment and meet some wonderful
> people who share in your interests and well being.
>
> Dee
>
>
>
> ----------------------------------------------------------------------
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