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Ervin, my very first dose of Sinemet was just great, but it never helped again. Strange. When I have tried it and Stalevo again and again I get dyskinesias in my chest muscles and no help.. I also had a F-DOPA PET scan from UCLA which said I was "consistent with PD'" The DBSs only helped my bilateral tremors and straightened out permanently my left foot turning inward from dystonia. I can barely walk, talk or use my hands. have fallen several times, but not recently. I am a strange case. DBS is also used for essential tremor and if I didn't have all these other PD symptoms I would think that is what I have. But on the first dose I felt normal, could walk normally,etc. "On" and "off" to me means are my neurostimulators on or off. Ray ----- Original Message ----- From: "Ervin McCarthy" <[log in to unmask]> To: <[log in to unmask]> Sent: Sunday, October 09, 2005 10:56 AM Subject: Re: Newly diagnosed PWP > Ray, I believe you wrote in the past that you couldn't tolerate sinemet. > How did you qualify for DBS? I thought that was a requirement in the > evaluation process. Thank you > ----- Original Message ----- > From: "rayilynlee" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Saturday, October 08, 2005 12:56 PM > Subject: Re: Newly diagnosed PWP > > >> Hi, Glenn Brown, and welcome to the List. My paternal uncle was Glenn >> Brown. I don't take PD meds but have had DBS brain surgeries for my >> tremors. I'm sure someone can help you with your question re Mirapex. I >> couldn't take it. >> Best wishes, Ray >> ----- Original Message ----- >> From: "Glenn Brown" <[log in to unmask]> >> To: <[log in to unmask]> >> Sent: Friday, October 07, 2005 7:50 AM >> Subject: Re: Newly diagnosed PWP >> >> >>> hello listers, >>> >>> i am new to this list and elated to have discovered it's existence. i >>> was >>> diagnosed 2&1/2 yrs. ago. my neurologist prescribed mirapex for my >>> symptoms >>> which are hand tremors, slowness >>> and slight imbalance. i started with 0.125 mil. 3x's a day and >>> increased >>> to >>> 0.5 3x's a day. unfortunately, i experienced an episode that caused >>> sweating >>> and a very sick feeling. needless to say, i ceased taking the >>> prescription >>> immediately. my dr.wou ld not respond to my phone call and had an >>> assistant to >>> telephone me instead. i was not at home and my wife took the message. >>> she >>> informed me that it was suggested that i see the psychiatrist that >>> works >>> with >>> their medical group. i felt that my concerns were worth professional >>> medical >>> intervention. i am now looking for another neurologist and i hope this >>> is >>> the >>> right course of action. nevertheless, is there anyone else on this list >>> having >>> difficulty or success with mirapex? if so' i'd like to hear what you >>> have >>> to say. >>> >>> glenn brown >>> >>> ---------------------------------------------------------------------- >>> To sign-off Parkinsn send a message to: >>> mailto:[log in to unmask] >>> In the body of the message put: signoff parkinsn >>> >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn >> >> >> -- >> No virus found in this incoming message. >> Checked by AVG Anti-Virus. >> Version: 7.0.344 / Virus Database: 267.11.11/121 - Release Date: >> 10/6/2005 >> >> > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn