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Ray -- We had the same situation at first with our doctor not wanting to program the ARC so we could make minor adjustments ourselves, but now have it programmed to be able to adjust at least the voltage settings. Even if the doc doesn't set it, you can still use it to turn yourself on if you accidentally get turned off. Doctors can charge up to about $360 a visit when they adjust the neurostimulator. They get nothing when we do it. I'm not saying that's the only reason why they don't want patients using it, but it's a thought worth pondering. ;-) Ted & Carole ----- Original Message ----- From: "rayilynlee" <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, October 08, 2005 11:10 AM Subject: Re: DBS/Are you turned off? > I've got to read the instructions on the ARC, but keep putting it off > because of my double vision. Nothing is simple. When I went to my neuro > he > didn't want to see it, but to use his own programming device. I was > hoping > he would tell me how to use it. Thanks for your help, Ray > ----- Original Message ----- > From: "Trauti Boyd" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Friday, October 07, 2005 5:06 AM > Subject: Re: DBS/Are you turned off? > > >> Hi Ray, >> I know how confusing all this can be. My husband had DBS in June, and to >> get information I have been on the phone with Medtronics numerous times. >> Since Parkinsons patients rarely turn off their stimulator, disabling the >> magnetic switch has very few drawbacks. If you have Medtronics' newer >> models >> the Access Therapy Controller can turn off the stimulator, and back on >> again, even with the magnetic switch disabled. If you do not have the >> controller (looks like a large, oldfashioned remote control), you would >> have >> to see a programmer every time you need a medical procedure where the >> stimulator needs to be off. >> Good luck >> Trauti >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn >> > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn