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You are so right, Joe.  I should be dead because of my poor attitude.  I
also especially dislike having well people tell me how I should feel.
Ray
----- Original Message -----
From: "Joe Ryan" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, October 13, 2005 1:59 PM
Subject: RIP Tinkerbelle


> Paula stated:
> I think that the spunk of the person has a lot to do with survival.  Hope
> is a strong healer.
>
> I'll go out on a limb with this one but I think the idea that a patients
> personal virtues or attributes affect medical outcomes gets way
> overstated. Hope is the result of an expectation or judgment that there
> will be a "good" outcome. Since hope can be misplaced it really does
> matter that we use good judgment about  where we place our hopes.
> To put an expectation on patients with serious diseases like PD or cancer
> that they be spunky might work out just fine if their own expectations for
> a good outcome happens as the result, say of medical treatment.
> What if that good outcome doesn't happen? Even if it's not our intent, are
> those patients now going to also be burdened with guilt for not being
> hopeful enough?
> Do you remember Tinkerbelle? Not the Disney character but the one from the
> tv play of a half century ago. She was played by the light from a spot
> light. She had just deliberately drank a cup of poison meant for Peter Pan
> and was dying. Just as her light was about to go out Peter turns directly
> to the camera and asks all the children to wish really hard and thus save
> her, and we did it! I felt wonderful.You must know what my next question
> is without my asking it.
> All I'm trying to say is that some things like taking care of those around
> you are in your control. Other things like the consequences of having this
> disease are not. Let's not add to the problem by expectations about how we
> should feel. My concerns about this comes from my wife's experiences on a
> forum for breast cancer survivors.
>
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> Joe

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