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I would be willing to participate in events in the western New York area: Buffalo, Rochester, Niagara Falls, etc. There must be at least 5 million people right across the border in southern Ontario as well, (metro-Toronto, etc.) another potential 'market' for your organizing efforts. I have no money, but being a musician, I know a bunch of people, especially in the entertainment field. Maybe I could be of service lining up a band or other entertainment for a benefit or media event. Hook me up, baby! Enjoy Fall! Rick McGirr Email: [log in to unmask] ----- Original Message ----- From: "meg at parkinsonheartland" <[log in to unmask]> To: <[log in to unmask]> Sent: Thursday, October 20, 2005 10:38 AM Subject: Proffesionals Caring for Us - Please Read > Forgive me if I ramble, but please read this and respond with your > thoughts. We here at the Parkinson Foundation of the Heartland have > this Parkinson Care Series, which is 8 videos and a seriously > substantial 500 page workbook. It is designed to train care > professionals to give optimal care to PWP - and to just better help > them understand PD, which we all know can be pretty baffling. The > professionals recieve CEs for taking the course. At any rate, after > a year of incredibly hard work, we now have a little over 200 > facilities who are using this product. These facilities train a > team as the "go to guys" for all things PD. Teams have an SLP, PT, > OT, Dietician, RN, the Administrator, and rounding doc. So far, so > good. Our thoughts on this are many-fold. We want all care > facilities to view PD has a market, to give them a reason to offer > specialized care, and to get them involved with us. We hope that > this effort will help the Parkinson community cohese into a more > subst! > antial group - one that demands specialized and knowledable care > professionals, and we hope that individuals and groups will begin > working with these communities to fundraise and offer improved > services wherever they are. We are in the midst of surveying our > Parkinson Proficient Communities to help guage their willingness to > be sponsors on things like runs, and to offer support, speech, > exercise, balance etc in their facilities and commnities. We are > getting really good responses from these guys. Here is Kansas City, > our first communties have become both event sponsors - most at > $2500, and are doing things like free assessments, free balance > classes, free speech classes, and are hosting some of our support > groups. It has truly been a win-win situation. These facilities > want to know and help PWP! They are smart enough to see us as a > market and do what needs to be done to get us engaged. As these > surveys come back about what groups are willing to do, we want to > begin hooki! > ng them up with folks in their communities for services and $! > $ or volunteer help. So, I am asking if you guys want to be hooked > up with people in your comunities for whatever. RIght now, I have a > GREAT group covering Texas, they are wealthy, enagaged and ready to > meet the community and offer help and services. For some reason, > niether HAPS or DAPS has really repsonded. These guys will be > corporate event sponsors and do what needs to be done! Same deal in > Arkansas. Our dream is that someday, everyone who has to use > services, home health, CCRCs, nursing care, rehabilitiation, > hopsice - will be able to say "Are you trained in how to care for > me" and if the answer is No, walk away and find someone who is. > Truly, this is my life's work. If you are interested in hooking up, > go to our website, www.parkinsonheartland.org and look at the > Parkinson Proficient Communities. If there is someone near you who > would like know and work with, email me and I will get you the > proper contact name. We expect to have a good view of this over the > next ! > couple of weeks, as the facilities respond and let us know what they > are willing and/or anxious to do! This is definatly a job for a > national organization, but we just didn't see it getting done. So, > like the little engine that could, we just got out there. Now, we > need the help of PWP across the country to ensure that these > facilities that have signed on see the value, and to be sure that > every damn facility in the country will see PWP as a force to be > reckoned with. We can use your help to get r done. Let me know > your thoughts, negative, positive, if you want to help with this > project, if you think its the worst idea ever. Thanks so much, Meg > Offlist, you can reach me at [log in to unmask], or > 913-341-8828. I'd also love to see a discussion of this on the > list. > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn