 |
 |
----- Original Message ----- From: "Marco DeMichiel" <[log in to unmask]> To: <[log in to unmask]> Sent: Wednesday, October 19, 2005 5:56 AM Subject: Re: comtan > Hi Merv, > > For what reason does your Neuro say your 'undermedicated'? I don't know > your situation or history but compared to me I'd say you were > overmedicated. I won't bore you with mydetails and ideas here, as most of > it is in my emails in the PIENO archive which, now I'm back, I intend to > consolidate and update and make available to the group. But just let me > say this for now; based on my experience I have no confidence in Neuro's > and GP's and I have no faith in the Pharmaceutical industry coming up with > a cure because they are only interested in drugs to manage[supress] > symptoms, of a given illness, for as long as possible, because of the > $dollars. PWPers are a 'gold mine' for them. I was told I was under > medicated in august 1999 and my Permax was increased to 3mg/day from > 1mg/day. Three months later I started to have swollen feet/ankles/legs. My > GP concluded that this was due to inactivity and in consultation with my > Neuro prescribed Sinemet(size 62,5). So from September 2000 I was taking > 3mg Permax and 3 (62,5) per day. There was no improvement in my mobility, > the swelling got worse and I started having problems with sleep. My GP > said I should increase the Sinemet; I refused. Here we are 5yrs later and > I'm no worse, if anything alittle better, especially if I get a good > nights sleep, and I'm only taking 2mg Permax and 2(62,50 Sinemet per day. > I reduced the daily dose more than 18months ago. And I'm glad I did > because I recently read that a Canadian leading Neuro has conclusive > evidence that Permax causes serious damage to the heart, such that it > should be withdrawn [he presented his paper in April 2004) and Permax is > still being prescribed, neither my GP nor Neuro have contacted me to > switch agonist!] I have only ever taken one other drug for a long period, > Prothiadenn, an anti-depressant, 8/1988 to 1/1990. This is no longer > prescribed as it had dangerous side-effects, like indducing Prkinsons! > > More later. > > Marco Marco: Good question! Why does neuro say I'm undermedicated. Who knows? I'm 73, diagnosed for 2 1/2 years, currently taking 5 1/2 sinemet a day. Doc has had me try amantadine, comtan, stalevo, mirapex- all with negative effects. So I'm doing my own thing. I do better without the excess meds. Going on a cruise in 2 weeks, joining an exercise class when I get back. Of course, I don't walk well and use a wheelchair part of the time. But things could be worse. Merv > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn