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Excellent website. ----- Original Message ----- From: "Maxine Krugman" <[log in to unmask]> To: <[log in to unmask]> Sent: Friday, October 21, 2005 8:21 AM Subject: Re: Proffesionals Caring for Us - Please Read > please people..these tapes are incredible and if you really want to do > things to help the parkinson community in which you live..i mean really > make a difference, here is a perfect way with so little effort on your > part. just do this... and meg, my dear...we are all in san francisco and > wish you were here too.. > maxine > > -----Original Message----- > From: meg at parkinsonheartland <[log in to unmask]> > To: [log in to unmask] > Sent: Thu, 20 Oct 2005 09:38:53 -0500 > Subject: Proffesionals Caring for Us - Please Read > > > Forgive me if I ramble, but please read this and respond with your > thoughts. We > here at the Parkinson Foundation of the Heartland have this Parkinson Care > Series, which is 8 videos and a seriously substantial 500 page workbook. > It is > designed to train care professionals to give optimal care to PWP - and to > just > better help them understand PD, which we all know can be pretty baffling. > The > professionals recieve CEs for taking the course. At any rate, after a year > of > incredibly hard work, we now have a little over 200 facilities who are > using > this product. These facilities train a team as the "go to guys" for all > things > PD. Teams have an SLP, PT, OT, Dietician, RN, the Administrator, and > rounding > doc. So far, so good. Our thoughts on this are many-fold. We want all > care > facilities to view PD has a market, to give them a reason to offer > specialized > care, and to get them involved with us. We hope that this effort will > help the > Parkinson community cohese into a more subst! > antial group - one that demands specialized and knowledable care > professionals, > and we hope that individuals and groups will begin working with these > communities to fundraise and offer improved services wherever they are. We > are > in the midst of surveying our Parkinson Proficient Communities to help > guage > their willingness to be sponsors on things like runs, and to offer > support, > speech, exercise, balance etc in their facilities and commnities. We are > getting > really good responses from these guys. Here is Kansas City, our first > communties have become both event sponsors - most at $2500, and are doing > things > like free assessments, free balance classes, free speech classes, and are > hosting some of our support groups. It has truly been a win-win > situation. > These facilities want to know and help PWP! They are smart enough to see > us as > a market and do what needs to be done to get us engaged. As these surveys > come > back about what groups are willing to do, we want to begin hooki! > ng them up with folks in their communities for services and $! > $ or volunteer help. So, I am asking if you guys want to be hooked up > with > people in your comunities for whatever. RIght now, I have a GREAT group > covering Texas, they are wealthy, enagaged and ready to meet the community > and > offer help and services. For some reason, niether HAPS or DAPS has really > repsonded. These guys will be corporate event sponsors and do what needs > to be > done! Same deal in Arkansas. Our dream is that someday, everyone who has > to use > services, home health, CCRCs, nursing care, rehabilitiation, hopsice - > will be > able to say "Are you trained in how to care for me" and if the answer is > No, > walk away and find someone who is. Truly, this is my life's work. If you > are > interested in hooking up, go to our website, www.parkinsonheartland.org > and look > at the Parkinson Proficient Communities. If there is someone near you who > would > like know and work with, email me and I will get you the proper contact > name. > We expect to have a good view of this over the next ! > couple of weeks, as the facilities respond and let us know what they are > willing > and/or anxious to do! This is definatly a job for a national > organization, but > we just didn't see it getting done. So, like the little engine that > could, we > just got out there. Now, we need the help of PWP across the country to > ensure > that these facilities that have signed on see the value, and to be sure > that > every damn facility in the country will see PWP as a force to be reckoned > with. > We can use your help to get r done. Let me know your thoughts, negative, > positive, if you want to help with this project, if you think its the > worst idea > ever. Thanks so much, Meg Offlist, you can reach me at > [log in to unmask], > or 913-341-8828. I'd also love to see a discussion of this on the list. > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn