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Merv, enjoy the cruise, email me when u get back. best wishes, Marco > ----- Original Message ----- > From: "Marco DeMichiel" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Wednesday, October 19, 2005 5:56 AM > Subject: Re: comtan > > >> Hi Merv, >> >> For what reason does your Neuro say your 'undermedicated'? I don't know >> your situation or history but compared to me I'd say you were >> overmedicated. I won't bore you with mydetails and ideas here, as most >> of >> it is in my emails in the PIENO archive which, now I'm back, I intend to >> consolidate and update and make available to the group. But just let me >> say this for now; based on my experience I have no confidence in Neuro's >> and GP's and I have no faith in the Pharmaceutical industry coming up >> with >> a cure because they are only interested in drugs to manage[supress] >> symptoms, of a given illness, for as long as possible, because of the >> $dollars. PWPers are a 'gold mine' for them. I was told I was under >> medicated in august 1999 and my Permax was increased to 3mg/day from >> 1mg/day. Three months later I started to have swollen feet/ankles/legs. >> My >> GP concluded that this was due to inactivity and in consultation with my >> Neuro prescribed Sinemet(size 62,5). So from September 2000 I was taking >> 3mg Permax and 3 (62,5) per day. There was no improvement in my >> mobility, >> the swelling got worse and I started having problems with sleep. My GP >> said I should increase the Sinemet; I refused. Here we are 5yrs later >> and >> I'm no worse, if anything alittle better, especially if I get a good >> nights sleep, and I'm only taking 2mg Permax and 2(62,50 Sinemet per >> day. >> I reduced the daily dose more than 18months ago. And I'm glad I did >> because I recently read that a Canadian leading Neuro has conclusive >> evidence that Permax causes serious damage to the heart, such that it >> should be withdrawn [he presented his paper in April 2004) and Permax is >> still being prescribed, neither my GP nor Neuro have contacted me to >> switch agonist!] I have only ever taken one other drug for a long >> period, >> Prothiadenn, an anti-depressant, 8/1988 to 1/1990. This is no longer >> prescribed as it had dangerous side-effects, like indducing Prkinsons! >> >> More later. >> >> Marco > > Marco: > > Good question! Why does neuro say I'm undermedicated. Who knows? > > I'm 73, diagnosed for 2 1/2 years, currently taking 5 1/2 sinemet a day. > Doc has had me try amantadine, comtan, stalevo, mirapex- all with negative > effects. So I'm doing my own thing. I do better without the excess meds. > Going on a cruise in 2 weeks, joining an exercise class when I get back. > Of > course, I don't walk well and use a wheelchair part of the time. But > things > could be worse. > > Merv >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn