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To Everyone, I apologize for disappearing after I reintroduced the HOW DID WE GET HERE ANYWAY SURVEY. Unfortunately for me, the last Sunday in September I took a nasty fall, so my time in front of the PC has been quite limited. Otherwise I would have sent messages every couple of weeks to remind all of us that the HOW SURVEY is one of the rare times when we have an opportunity for input. The first time the survey was offered, I believe PIEN alone had somewhere in the neighborhood of 1600 members. We would have been satisfied with 500 responses. We got a total of 149. Initially, I remember receiving a call from someone a good many of us know who advised me that though the survey had much to offer, PDers wouldn't participate. She had made many such attempts to no avail. Disappointed and somewhat discouraged, we put the survey to rest - until this year. Maxlne Krugman, President of the Parkinson Association of the Sacramento Valley, who has done and who is doing so much for PD as a whole saw the survey's potential. She got in touch with the Gerontology Dept., at Sacramento State University. They, in turn, were impressed with the survey's potential and assigned an intern to the project. All we have to do is participate! True, the survey is long, but if we do 2 pages a day, we can finish in a week. If more time is needed, let someone know you need more time. Just don't give up! When all is said and done, this survey, among other things, seeks to discover what if anything has occurred in our lives that we have in common. We look for answers about this trickster degenerative neuromuscular disease that manipulates us on puppet strings. We look for answers in every message found in our e-mail everyday. We laugh, cry and commiserate together, but when we might be able to find some answers on our own that might possibly contribute to a better understanding of the time warp in which we live, we choose to walk another path. I remind all of us that we know more of what is wrong with us than the medical professionals who write our prescriptions. Many of these professionals want to understand what our needs might be. Until we supply some information that might prove or disprove what controls the STRANGER WITHIN US, there is a great void that will continue to control us, and we will go on venting our frustrations on line or waiting in silence. Join me by copying the survey from www.parkinsonsacramento.org Complete it to the best of your ability. Then send it to the address supplied. Remember not to indicate your name unless you care to do so. The HOW SURVEY doesn't want your name. It wants to know what has occurred in your life that may mirror what someone else has experienced! Thanks to all of us for participating! In friendship and caring, E ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn