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Dee, Several years ago I both strongly urged the group to establish a database and designed an in depth questionnaire. I was dissapointed by the response, i.e. very few. The comments ranged from 'too complex', 'invasion of privacy', 'too late for me, why bother'.The questionnaire was severely cut and eventually circulated. The management of this was done by Edith and Mario. I did not take part because the data being collected would not have, in my opinion, produced any meaningful results. I don't think my original questionnaire was too complex, i.e. too many questions. In fact, I think more could be added. As for invasion of privacy there would have been none because there was no way of identifying the individual from the responses. And as for the last point, I think we have a duty and responsibility to do whatever we can to help identify the cause/s of PD; even if we don't individually benefit. I still believe that this group, the largest in the world, could produce some very interesting analysis/results. One key point, it should be completed without the involvement of any Drug company, or any Research Department that is receiving any funding from a Drug company. Marco ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn