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>I discovered >espresso coffee helps. The most important thing is to have a positve >attitude. Right you are, Marco. We must hang tough. I survive on coffee. My friend was recently showing off his new, $500 espresso machine. Wow! I'm saving my pennies. Would that I could stop working, you lucky so and so. But only the non-musical kinds of work that I do. I'm seeing the end of a long string of things that kept me from doing what I do, which is to play the piano, and I'm determined to just play a little more while I can. My hope is just give me a few good years... Enjoy Fall! Rick McGirr Email: [log in to unmask] ----- Original Message ----- From: "Marco DeMichiel" <[log in to unmask]> To: <[log in to unmask]> Sent: Thursday, November 10, 2005 4:50 AM Subject: Re: What to expect/Debbie > Debbie, > > It's not as black as Raylin states. I was diagnosed April 1993, > stopped > work August 1996, started meds Feb 1999[Permax] and Aug 2000 > [Sinemet]. > The most difficult period was 1997 thru 1998. Permax [agonist] > turned > everything around. August 2004 i reduced the daily dosage and I'm > doing > OK. I don't shake or have any involuntary movement; my speech has > not > changed. I can take of my personal needs and cooking [I'm on my own > most > days as my wife has rejected me]. The only boooks i read are on > nutrtion, > fitness and the brain = most PD books are too depressing. I > discovered > espresso coffee helps. The most important thing is to have a positve > attitude. > > have faith and never loose hope. > > Marco > > > Debbie, I wish I had done more in my "honeymoon" period of PD. >> >> In the beginning my left hand tremor was "interesting". By the >> time I had >> my DBS surgeries in 2003 bilateral tremors were driving me crazy. >> In the >> beginning 1996 I could write, talk, walk, everything...even went >> to >> Australia/New Zealand no cane in 1997 and Egypt with a cane in >> 1999. >> >> The one thing we can expect is we will get worse. The question is >> how >> fast >> and how bad and how well will meds or brain surgery help. >> Ray. >> ----- Original Message ----- >> From: "MyFirstname Mylastname Debbie Shontz" <[log in to unmask]> >> To: <[log in to unmask]> >> Sent: Tuesday, November 08, 2005 8:00 PM >> Subject: Re: What to expect/Debbie >> >> >>> Yes, I want to stay off meds as long as possible. The tremor is >>> not bad >>> when >>> I am using the hand but when I am still or tired or upset, it sure >>> is >>> different. I am trying to cope with all these symptoms. Now that >>> I >>> think >>> back about >>> all my aches and pains and going to the orthopedic Dr, I must have >>> had >>> this >>> for years only that the tremor and rigidity diagnosed it. I am >>> going to >>> Baltimore to check out a study and a good international Dr. there >>> in >>> Dec. >>> Some >>> people think I may not have PD but I am convinced. >>> Debbie >>> >>> ---------------------------------------------------------------------- >>> To sign-off Parkinsn send a message to: >>> mailto:[log in to unmask] >>> In the body of the message put: signoff parkinsn >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn >> >> > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn