Hello [log in to unmask],
In reference to your comment:
http://www.youngparkinsons.com/newhome/"www.youngparkinsons.com/newhome/
I don't get anything with this link either.
========Original Message======== Subj: Ask The Pharmacist With
Parkinson's (bad link) Date: 11/28/2005 2:02:00 A.M. Eastern Standard Time
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From:
========================================================================Date: Mon, 28 Nov 2005 18:52:53 -0600
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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Comments: RFC822 error: <W> Incorrect or incomplete address field found and
ignored.
From: John Cottingham
<[log in to unmask]>
Subject: The Katrina Emergency Tax Relief Act of 2005 creates incentives
for charitable giving through December 31, 2005
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As the aftermath of hurricane Katrina, congress has included, in the tax
law, an incentive for increased tax deductible contributions which expire
at the end of this year. If your family's adjusted gross income is less
than roughly $147,000 dollars a year this law could enable you to increase
your support for Parkinson's organizations before the end of the year.
Consult with your tax advisor or CPA to see how the law could affect you.
Parkinson's organizations that support research are:
The Parkinson Alliance; 100% of your contributions are matched dollar for
dollar:
http://www.parkinsonalliance.org
National Parkinson Foundation
http://www.parkinson.org
Parkinson Disease Foundation
http://pdf.org
Michael J. Fox Foundation
http://michaeljfox.org/
John Cottingham
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========================================================================Date: Mon, 28 Nov 2005 10:01:51 -0500
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Sheri Harper <[log in to unmask]>
Subject: Re: Introduce myself
In-Reply-To: <[log in to unmask]>
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Hi, you shound like me, I was just diagnosed but felt I had the symptoms for a couple of years. I have been taking Requip which has given me back my life. I can now run and exersize which was something I had to give up because of the balance and feeling really unsteady on my feet. I am going to my first meeting this Thursday, the Young PD group, hope it is ok. I am somewhat nervous about attending but my daughter is a nurse and feels I need to go. My mother feels there will be people there worst off then me and I will get uipset! I will keep you posted on the meeting. It is good to hear from someone my age.
Sheri Harper
-----Original Message-----
From: Lynnette Love <[log in to unmask]>
To: [log in to unmask]
Sent: Sun, 27 Nov 2005 20:25:24 EST
Subject: Introduce myself
Hi. My name is Lynnette. I am a 55 year old divorcee
who lives in Sacramento, Calif. I live alone and have no
family nearby. I was diagnosed with PD 9 years ago, but
now realize I had symptoms several years prior to that.
I work full time and am an active equestrian. I own my own
palomino horse. I am a member of the Sheriff's Posse and
rode on the drill team until a year ago. I gave it up when I
began to feel nervous and felt like I couldn't properly control
the horse. I still ride, but have stopped competing with the
Posse.
In an effort to find local support groups (there aren't any in my
area) I found the APDA Young Parkinson's Info Center. They provided
the information to join this site.
Look forward to getting more acquainted.
Happy Trails to You!
Lynnette
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========================================================================Date: Tue, 29 Nov 2005 01:24:20 GMT
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: "[log in to unmask]" <[log in to unmask]>
Subject: Michael J. Fox Foundation Announces Funding for Ceregene Phase 1
Gene therapy clinical trial
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Michael J. Fox Foundation Announces Funding for Ceregene Phase-1 Gene Therapy Clinical Trial
11/28/2005
U.S. Newswire (press release) - Washington,DC,USA
NEW YORK, Nov. 28 /U.S. Newswire/ -- The Michael J. Fox Foundation for Parkinson’s Research (MJFF) today announced a three-year grant of approximately $740,000 to Ceregene, Inc., a San Diego-based biotechnology company. The grant will help fund Ceregene’s Phase I clinical study of CERE-120, a novel gene therapy product that has shown potential in pre-clinical testing to slow or stop the progression of Parkinson’s disease by using a vector to deliver neurturin, a potent nervous system growth factor.
full text at:
http://releases.usnewswire.com/GetRelease.asp?id=57198
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========================================================================Date: Mon, 28 Nov 2005 06:10:09 -0600
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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Comments: RFC822 error: <W> Incorrect or incomplete address field found and
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From: John Cottingham
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Subject: Re: Introduce myself
Mime-Version: 1.0
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Lynette, welcome to Parkinsn.
We have been an international Parkinson's support group for the last 13 years.
The archives containing every message sent to Parkinsn is searchable on the
Parkinsn website at:
http://parkinsons-information-exchange-network-online.com
The archives can be searched on any page that has a gray searchbox. Weekly,
our own search engine indexes the content of most of the major Parkinson's
organizations. The PIENO search engine has found the answers to your
neurological, medicine questions.
Lynette, there are several support groups in the Sacramento Valley. I would
suggest you look at this site:
http://www.parkinsonsacramento.org/groups.html
Barbara Patterson and I are glad you have joined us.
John Cottingham
co-owner Parkinsn
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========================================================================Date: Mon, 28 Nov 2005 16:40:51 EST
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: Amanda Phillips <[log in to unmask]>
Subject: Re: quoting
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You may quote me
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========================================================================Date: Mon, 28 Nov 2005 16:45:51 EST
Reply-To: Parkinson's Information Exchange Network
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From: Amanda Phillips <[log in to unmask]>
Subject: Re: Women paid for eggs
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So he may have made a mistake .... yell at him, make him promise to be more
carefull, then get on with the job.
In England, blood donors are not paid, this is mainly because it attracted
people desperate for money, who were often not healthy enough to donate.
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========================================================================Date: Tue, 29 Nov 2005 21:15:39 +0100
Reply-To: Parkinson's Information Exchange Network
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Sender: Parkinson's Information Exchange Network
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From: "M.Schild" <[log in to unmask]>
Subject: From Care
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TO : members of PIEN
I am in touch with a young Chinese man who is a student here at Miami
U. in Ohio. He is very concerned about how to support his
grandmother--in Hong Kong-- who has cancer (not PD) , but
sadly, there is no CARE member in China or Hong Kong
to refer him to. Another CG suggests that there may be someone on
PIEN who is from that area and might be able to suggest appropriate
resources. She lives alone, and there are family members, but not
very near her. Any suggestions will be most welcome--this is a very
devoted grandson !
Thanks for anything you can do--
Camilla Flintermann --owner of CARE list for CGs of Parkinsonians, and
former CG for husband,Peter, who died 6/01--diagnosed at 71,
symptoms since about age 56
****visit my website at www.geocities.com/camillahf/ ****
***********
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========================================================================Date: Tue, 29 Nov 2005 22:58:52 +0100
Reply-To: Parkinson's Information Exchange Network
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From: "M.Schild" <[log in to unmask]>
Subject: Studies Offer Evidence of 'Placebo Effect'
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If your mind truly believes your medicines will work, they may actually have
more of an effect in your body, according to numerous studies examining this
so-called "placebo effect."
"Your expectations can have profound impacts on your brain and your health,"
Columbia University neuroscientist Tor Wager told the Associated Press.
It has long been believed that the placebo effect was psychological. However,
new studies are offering direct evidence that the placebo effect is physical
and that expectations of benefiting from treatment actually activate the same
neurological healing pathways that are triggered by drugs.
One example is new research that suggests that a proven painkiller doesn't
work as well once Alzheimer's disease robs people of the ability to expect
that the painkiller will help them, the AP reported.
Another example involves Parkinson's disease patients who were given a placebo
while researchers measured electrical activity of individual nerve cells in
an area of the brain that controls movement.
After the Parkinson's patients received the placebo, there was a 40 percent
decrease in the firing of these nerve cells that correlated with improvement
in the patients' ability to move, the AP reported.
-----
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========================================================================Date: Tue, 29 Nov 2005 20:24:39 EST
Reply-To: Parkinson's Information Exchange Network
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From: MyFirstname Mylastname Debbie Shontz <[log in to unmask]>
Subject: Re: Introduce myself
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Hi I am Debbie from Maryland. I was diagnosed in October and feel I have
had it longer with back and leg pain. I am unsteady on my feet too and get
tired easily. I have a left hand tremor. After seeing an orthopedic DR. for
months, I noticed the tremor and diagnosed myself online. Then waited a month
for apt. with neurologist. I am on no meds and see another Dr. in Dec. in
Baltimore. I want to feel better with the unsteady feeling, pain, and tremor and
general shaky feeling at times. I hate to take meds and am afraid of the side
effects so any info about them would be helpful. I am very active with my
grandchildren. I am 63. DEBBIE
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========================================================================Date: Tue, 29 Nov 2005 20:26:00 EST
Reply-To: Parkinson's Information Exchange Network
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From: MyFirstname Mylastname Debbie Shontz <[log in to unmask]>
Subject: Re: Introduce myself
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About the support group. I went to my first meeting last week and it was
really scarey. Lots of walkers, wheel chairs and care givers. I was the best of
shape there. I don't know if I will go back or not. DEBBIE
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========================================================================Date: Tue, 29 Nov 2005 23:01:36 +0100
Reply-To: Parkinson's Information Exchange Network
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From: "M.Schild" <[log in to unmask]>
Subject: Ecstasy may help with Parkinson's disease
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An illegal drug notorious for its use in nightclubs may actually benefit
victims of Parkinson's disease.
Research suggests that ecstasy may partially reverse symptoms similar to
Parkinson's in mice who are unable to produce the chemical dopamine in their
brains.
Dopamine helps to control movement, and is found lacking in those afflicted by
the disease.
"I once knew myself to be coordinated and athletic. I used to be a
runner," says David Eger. "I can't do that" anymore, he says.
Mice provided with the drug show promising results. "They went from a
situation when they completely frozen to ability to move quite significant
distance and pretty much normally," says Raul Gainetdinov of Duke University.
The researchers say the amphetamine works best when combined with the
Parkinson's drug L-Dopa, which has long-term side effects like the loss of
muscle control.
"You can use a much lower concentration of L-dopa. Then, that might, that
might do away with some of the side effects of the L-dopa treatment," says
Marc Caron of Duke University.
The treatment may have promise, according to Michael Hutchinson of New York
University.
"It might be useful in the later stages of Parkinson's where conventional
medications fail to work," he says.
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========================================================================Date: Wed, 30 Nov 2005 07:57:14 -0000
Reply-To: Parkinson's Information Exchange Network
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From: Marco DeMichiel <[log in to unmask]>
Subject: Re: Introduce myself
In-Reply-To: <[log in to unmask]>
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Debbie,
I have always kept away from groups for the very reason you describe but
your words, 'I was the best of shape there', has made me think that those
of us who are less affected and strong willed and determined to fight the
advance of PD by 'mind over matter' and alternative therapies should go to
groups to show and share our beliefs and successes; to change outdated
thinking and care regimes; to remove the 'doom and gloom'.
I was diagnosed in 1993 and feel I'm doing OK. I have never thought of PD
as being an end but more as a bginning
marco
> About the support group. I went to my first meeting last week and it was
> really scarey. Lots of walkers, wheel chairs and care givers. I was the
> best of
> shape there. I don't know if I will go back or not. DEBBIE
>
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========================================================================Date: Wed, 30 Nov 2005 01:35:09 -0800
Reply-To: Parkinson's Information Exchange Network
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From: Terry Robertson <[log in to unmask]>
Subject: Re: Introduce myself
In-Reply-To: <[log in to unmask]>
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My name is Terry:
This is my first posting on this list and is in fact my first attempt at any network posting so I will be curious to see if I am doing things right. I am 58 and was first diagnosed with PD a few months ago. I went to a local support group and while it was informative and I learned a little more about this disease, like you Debbie, I had a similar reaction. I found it a bit scary and definitely depressing. I don't think I will be going back any time soon, especially now that I have found this network. It has been my support group for the past couple of months, even just as an observer.
I am also going to say something more general about this list network.
I really appreciate some of the personal stories and some of the latest updates on scientific developments in the field of PD research, as well as the reports on the various drugs people are using and their results and reactions.
While I think it is appropriate on this network to keep the user/readers informed of PD political matters and lobbying efforts on the issue of promoting more PD research funding (like the Michael J Fox Foundation does), I think it is inappropriate that so many posting have recently centred around whether excess fetal stem cells should be cloned... creative design vs. evolution... the ethics of buying blood or selling eggs and what a scientific theory is. I have strong views on those topics, but this is not the place to discuss them. I wish those who do, would go somewhere else to discuss American political issues. In most of the rest of the world such matters have been decided long ago and they are not relevant on this international PD network. Such discussions do nothing to give aid, comfort or hope to PWP. So I wish everyone would keep their eye on the ball and limit comments to subjects that bear direct relevance to PD, especially to promising research and developments of any kind, whether in South Korea, USA, Canada, Europe, or wherever. Religious and political squabbles only interfere with, and delay the search for better treatment and possible cures, so why perpetuate them on this network?
*********** REPLY SEPARATOR ***********
On 11/29/05 at 8:26 PM MyFirstname Mylastname Debbie Shontz wrote:
>About the support group. I went to my first meeting last week and it was
>really scarey. Lots of walkers, wheel chairs and care givers. I was the
>best of
>shape there. I don't know if I will go back or not. DEBBIE
>
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