 |
 |
Thank you, Thank you, I feel the same way! My name is Sheri and I justed started with this support group a few weeks ago, I am 57 and was first diagnosed with PD a few months ago. My doctors felt I should join a support group and I thought it would be ok. For the last couple of weeks I have also been concerned about the information that is coming from some of the group. I agree we do not need to use this group to express our views. I will be attending my first young support group tomorrow night, I hope it will be fine. Thank you again for expressing your views, I am sure there are many of us that agree with you, but have not said so. I joined this group in hope that I would meet people like you, so thanks again for your e-mail. -----Original Message----- From: Terry Robertson <[log in to unmask]> To: [log in to unmask] Sent: Wed, 30 Nov 2005 01:35:09 -0800 Subject: Re: Introduce myself My name is Terry: This is my first posting on this list and is in fact my first attempt at any network posting so I will be curious to see if I am doing things right. I am 58 and was first diagnosed with PD a few months ago. I went to a local support group and while it was informative and I learned a little more about this disease, like you Debbie, I had a similar reaction. I found it a bit scary and definitely depressing. I don't think I will be going back any time soon, especially now that I have found this network. It has been my support group for the past couple of months, even just as an observer. I am also going to say something more general about this list network. I really appreciate some of the personal stories and some of the latest updates on scientific developments in the field of PD research, as well as the reports on the various drugs people are using and their results and reactions. While I think it is appropriate on this network to keep the user/readers informed of PD political matters and lobbying efforts on the issue of promoting more PD research funding (like the Michael J Fox Foundation does), I think it is inappropriate that so many posting have recently centred around whether excess fetal stem cells should be cloned... creative design vs. evolution... the ethics of buying blood or selling eggs and what a scientific theory is. I have strong views on those topics, but this is not the place to discuss them. I wish those who do, would go somewhere else to discuss American political issues. In most of the rest of the world such matters have been decided long ago and they are not relevant on this international PD network. Such discussions do nothing to give aid, comfort or hope to PWP. So I wish everyone would keep their eye on the ball and limit comments to subjects that bear direct relevance to PD, especially to promising research and developments of any kind, whether in South Korea, USA, Canada, Europe, or wherever. Religious and political squabbles only interfere with, and delay the search for better treatment and possible cures, so why perpetuate them on this network? *********** REPLY SEPARATOR *********** On 11/29/05 at 8:26 PM MyFirstname Mylastname Debbie Shontz wrote: >About the support group. I went to my first meeting last week and it was >really scarey. Lots of walkers, wheel chairs and care givers. I was the >best of >shape there. I don't know if I will go back or not. DEBBIE > >---------------------------------------------------------------------- >To sign-off Parkinsn send a message to: >mailto:[log in to unmask] >In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn