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Thanks, Rick. I can tolerate a lot of rhetoric that I don't agree with, and if I get to the point of not wanting to read what I consider drivel, the subject line clues me in and I hit the delete button. We must keep the issues in front of our politicians. Being vocal is not a guarantee that they will hear us or act accordingly, but one thing you can bet on: if we shut up, they certainly won't hear us. Katie Caregiver for Russ, age 56 ----- Original Message ----- From: "Rick McGirr" <[log in to unmask]> To: <[log in to unmask]> Sent: Wednesday, November 30, 2005 12:24 PM Subject: Re: Introduce myself/Terry > >Religious and political squabbles only interfere with, and delay the >>search for >better treatment and possible cures, so why perpetuate >>them on this network? > > Terry, > > If your views are strongly held, as mine are, even tho differing, > those views are valid, and certainly have a direct effect on the > course of our common fight. For example, it's the people who come > down on one side of the fence that have held up in the courts the $3 > billion earmarked for controversial research. If we are truly to > cooperate on defeating our little friend, we must be up front with > each other. All thru life you and I have experienced people with more > or less of a penchant for self expression, some very agreeable, some > stuff you just don't need to hear, or wouldn't want to anyway. That's > up to you. But, for example, if someone objects to ESCR and cloning > on religious grounds, and will not support it in any way, and if such > research appears to be an area of major promise for treating disease, > naturally you're going to have people coming down strongly on both > sides of the issue. I think it's definitely counterproductive to just > shut up about it. It's undemocratic. It leaves too much for the > powers that be to decide. The little people, the people actually > afflicted, should speak with the loudest voices. If the voice is > shrill, or carries a statement that evokes strong responses, or if the > speaker is immovable or just wrong, that's part of living with 6 > billion other people. Rare is the place where one can go to acheive > true silence. And here, in web-land, where the words sit silently > waiting for you to read them, may be the best place to thoughtfully > express those views. And what I can say about this listserv is that > just about everything I've ever read here has been thoughtfully > contributed, no matter the position. > > Terry, I'm just a free-speech kind of guy, and I've learned here > something about focusing on the bottom line, and about not letting > what someone says trigger a barrage of rhetorical foam from me. But > I'm willing to live next door to any one of y'all. I'll put up with > your country music if you'll put up with my heavy metal, so to speak. > Both can be really noisy, but both have common roots. > > Respectfully, > Rick McGirr > Email: [log in to unmask] > > > ----- Original Message ----- > From: "Terry Robertson" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Wednesday, November 30, 2005 4:35 AM > Subject: Re: Introduce myself > > >> My name is Terry: >> This is my first posting on this list and is in fact my first >> attempt at any network posting so I will be curious to see if I am >> doing things right. I am 58 and was first diagnosed with PD a few >> months ago. I went to a local support group and while it was >> informative and I learned a little more about this disease, like you >> Debbie, I had a similar reaction. I found it a bit scary and >> definitely depressing. I don't think I will be going back any time >> soon, especially now that I have found this network. It has been my >> support group for the past couple of months, even just as an >> observer. >> I am also going to say something more general about this list >> network. >> I really appreciate some of the personal stories and some of the >> latest updates on scientific developments in the field of PD >> research, as well as the reports on the various drugs people are >> using and their results and reactions. >> While I think it is appropriate on this network to keep the >> user/readers informed of PD political matters and lobbying efforts >> on the issue of promoting more PD research funding (like the Michael >> J Fox Foundation does), I think it is inappropriate that so many >> posting have recently centred around whether excess fetal stem cells >> should be cloned... creative design vs. evolution... the ethics of >> buying blood or selling eggs and what a scientific theory is. I have >> strong views on those topics, but this is not the place to discuss >> them. I wish those who do, would go somewhere else to discuss >> American political issues. In most of the rest of the world such >> matters have been decided long ago and they are not relevant on this >> international PD network. Such discussions do nothing to give aid, >> comfort or hope to PWP. So I wish everyone would keep their eye on >> the ball and limit comments to subjects that bear direct relevance >> to PD, especially to promising research and developments of any >> kind, whether in South Korea, USA, Canada, Europe, or wherever. >> Religious and political squabbles only interfere with, and delay the >> search for better treatment and possible cures, so why perpetuate >> them on this network? >> >> *********** REPLY SEPARATOR *********** >> >> On 11/29/05 at 8:26 PM MyFirstname Mylastname Debbie Shontz wrote: >> >>>About the support group. I went to my first meeting last week and >>>it was >>>really scarey. Lots of walkers, wheel chairs and care givers. I >>>was the >>>best of >>>shape there. I don't know if I will go back or not. DEBBIE >>> >>>---------------------------------------------------------------------- >>>To sign-off Parkinsn send a message to: >>>mailto:[log in to unmask] >>>In the body of the message put: signoff parkinsn >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn >> > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn