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I only cut and pasted.  Ray
----- Original Message -----
From: "Mary Ann Ryan" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, December 08, 2005 6:26 AM
Subject: Re: Genetic testing for PD


> Ray wrote:
>>      Should we start being genetically tested for Parkinson's disease
>> (PD)? According to research just published in the December issue of the
>> "journal Movement Disorders" this might be a possibility in the future if
>> you belong to a family affected by G2019S, a genetic mutation responsible
>> for some PD cases.
>
>
> This is a real 'land-mine' issue.  Because of our work in Adult Day
> Service,
> I used to belong to the Huntington's Disease Society.  Discussions
> concerning genetic testing occurred at almost every meeting.  The problem
> was, once insurance companies discovered that a person was being
> genetically
> tested, their coverage would either increase, cease, or couldn't be
> obtained.  Furthermore, family members discovered that they were reluctant
> to find out whether they would eventually become victims of the disease.
> It
> is not an easy decision to make.
> ----------
> God bless
> Mary Ann (CG Jamie 66/26 with PD)
>
>
>
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