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Hello Bev,
I just read your post, copied below, to the Parkinson listserve.  I  emailed
you earlier this morning in response to your email with you and your
husband's names and contact information.

If you attend the program on Friday January 6, Dr. Michael Dogali and Dr.
Abraham Lieberman are speaking.  Dr. Michael Dogali, a neurosurgeon, will
discuss his work with deep brain stimulation and Dr. Abraham Lieberman, a
Parkinson's disease and Movement Disorder specialist with 35 years experience,  is
sharing his insights and expertise.   Dr. Lieberman has  offices in Boca Raton
and North Bay Village.  You might check his web site  at
_www.liebermanparkinsonclinic.com_ (http://www.liebermanparkinsonclinic.com/)   as there is a wealth
of information there.

If you attend our February 3, 2006 Medicare Rx Drug Plan - Part D -
Parkinson's specific program, you will have an opportunity to ask questions  about the
Medicare Rx Program from the speaker sharing information about that in
addition to two neurologists who specialize in Parkinson's disease and Movement
Disorders...  Dr. Abraham Lieberman will again join us along with Dr.  Stuart
Isaacson, also a Parkinson's disease and Movement Disorder specialist  with an
office in Boca Raton.

My sister, Fran Landes, was diagnosed with Parkinson's in 1998 in her
mid-forties.  Take Charge! Cure Parkinson's, Inc. was founded in  1999.  I look
forward to meeting you at one or both of the programs.   Please do introduce
yourself.

Sincerely,

Alison  Landes
Founder & President
Take Charge! Cure Parkinson's, Inc.
1489  W. Palmetto Park Road, Suite 442
Boca Raton, Florida 33486
Tel:  561.620.1970
Fax: 561.488.5726
E-mail: [log in to unmask]
Web  site: _www.cureparkinsons.org_ (http://www.cureparkinsons.org/)




In a message dated 1/2/2006 2:10:38 A.M. Eastern Standard Time,
[log in to unmask] writes:

Hi,  all.  My name is Beverly Bashe, and I'm new to the list.  I do not  have
Parkinson's Disease, but my husband, David, does.

David has been  ill at least 38 years...and we've been married for 40 years.
He was not  diagnosed until about 10 years ago, but has been on leva dopa for
about 33  years.  At this time, he's on Stalevo and Permax.

Three years ago,  David had brain stimulator surgery at New York Presbyterian
Hospital after his  ability to balance himself went down to near zero.
Michael Kapplitt was  his surgeon.  Michael has been a special and treasured person
in our  lives.  He's a fantastic surgeon, brilliant and passionate about his
work, and is a compassionate physician and human being.  In retrospect, I
think that he worked with a neurologist in Toronto, perfecting the brain
stimulator surgery before moving to NY.

Although the surgery was  successful, the disease continues its inexorable
downward slide.  David's  mental profile prior to the surgery sent up some red
flags as to the  appropriateness of the operation, but, frankly, he had nowhere
to go.   Michael and I discussed the situation a couple of weeks prior to the
 operation.  He stated that he didn't want to hurt David, but if he didn't
have it, he'd be spending the rest of his life strapped in chairs.   Yet...I'm
not sure that the operation did him a favor: he was definitely  damaged by the
surgery, having lots of residual problems.  His balance  was restored, but
that, too, is getting worse again due to the progression of  the disease.

David's neurologist, David Eidelberg, is in Manhasset, NY,  and runs the
Movement Disorders Clinic at North Shore Hospital.  He works  pretty closely with
Michael Kaplitt, and was instrumental in David's recovery  post surgery.  Dr.
Eidelberg believes that David has early-onset  Parkinsons, brought on by the
environmental toxins in the gas station he owned  with his brother, Jerry.
Jerry, btw, developed symptoms about 11 years  ago, and died within 5 years.  No
one in this long-lived family has ever  shown symptoms of movement disorders
before David and Jerry.  Now,  however, a cousin has also been diagnosed, but
he was a chemist, handling and  breathing chemicals for 40 years.  Hmmmmmm.

We're looking for a  new neurologist who might be located in Florida.  We
just moved from Long  Island, NY, to Delray Beach, Florida.  Dr. Eidelberg has
recommended a  colleague of his by the name of Carlos Singer at the University
of Miami, but  we haven't gotten in touch with him, yet.  Does anyone know of
him?   Is there anyone else whom some of you might recommend, someone who's
really  involved exclusively with Parkinsons?

Both David and I are looking  forward to corresponding with this group.  I do
most of the  communicating, because David doesn't have the coordination to
type or use a  mouse.  However, he is directly involved with what I write.  We'd
 both like to know if anyone on this list has developed Parkinsons Disease
after working with or having been in an atmosphere of chemicals.

It  will be a pleasure getting to know you.

Bev  Bashe




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