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Hi, Alison. Thank you for all you wrote. I've registered for the Friday program, and will call today to register for the Feb. program. The library was closed yesterday, and I couldn't register for that one until today. I am looking forward to meeting you, too. Bev Bashe ---- Alison Landes <[log in to unmask]> wrote: > Hello Bev, > I just read your post, copied below, to the Parkinson listserve. I emailed > you earlier this morning in response to your email with you and your > husband's names and contact information. > > If you attend the program on Friday January 6, Dr. Michael Dogali and Dr. > Abraham Lieberman are speaking. Dr. Michael Dogali, a neurosurgeon, will > discuss his work with deep brain stimulation and Dr. Abraham Lieberman, a > Parkinson's disease and Movement Disorder specialist with 35 years experience, is > sharing his insights and expertise. Dr. Lieberman has offices in Boca Raton > and North Bay Village. You might check his web site at > _www.liebermanparkinsonclinic.com_ (http://www.liebermanparkinsonclinic.com/) as there is a wealth > of information there. > > If you attend our February 3, 2006 Medicare Rx Drug Plan - Part D - > Parkinson's specific program, you will have an opportunity to ask questions about the > Medicare Rx Program from the speaker sharing information about that in > addition to two neurologists who specialize in Parkinson's disease and Movement > Disorders... Dr. Abraham Lieberman will again join us along with Dr. Stuart > Isaacson, also a Parkinson's disease and Movement Disorder specialist with an > office in Boca Raton. > > My sister, Fran Landes, was diagnosed with Parkinson's in 1998 in her > mid-forties. Take Charge! Cure Parkinson's, Inc. was founded in 1999. I look > forward to meeting you at one or both of the programs. Please do introduce > yourself. > > Sincerely, > > Alison Landes > Founder & President > Take Charge! Cure Parkinson's, Inc. > 1489 W. Palmetto Park Road, Suite 442 > Boca Raton, Florida 33486 > Tel: 561.620.1970 > Fax: 561.488.5726 > E-mail: [log in to unmask] > Web site: _www.cureparkinsons.org_ (http://www.cureparkinsons.org/) > > > > > In a message dated 1/2/2006 2:10:38 A.M. Eastern Standard Time, > [log in to unmask] writes: > > Hi, all. My name is Beverly Bashe, and I'm new to the list. I do not have > Parkinson's Disease, but my husband, David, does. > > David has been ill at least 38 years...and we've been married for 40 years. > He was not diagnosed until about 10 years ago, but has been on leva dopa for > about 33 years. At this time, he's on Stalevo and Permax. > > Three years ago, David had brain stimulator surgery at New York Presbyterian > Hospital after his ability to balance himself went down to near zero. > Michael Kapplitt was his surgeon. Michael has been a special and treasured person > in our lives. He's a fantastic surgeon, brilliant and passionate about his > work, and is a compassionate physician and human being. In retrospect, I > think that he worked with a neurologist in Toronto, perfecting the brain > stimulator surgery before moving to NY. > > Although the surgery was successful, the disease continues its inexorable > downward slide. David's mental profile prior to the surgery sent up some red > flags as to the appropriateness of the operation, but, frankly, he had nowhere > to go. Michael and I discussed the situation a couple of weeks prior to the > operation. He stated that he didn't want to hurt David, but if he didn't > have it, he'd be spending the rest of his life strapped in chairs. Yet...I'm > not sure that the operation did him a favor: he was definitely damaged by the > surgery, having lots of residual problems. His balance was restored, but > that, too, is getting worse again due to the progression of the disease. > > David's neurologist, David Eidelberg, is in Manhasset, NY, and runs the > Movement Disorders Clinic at North Shore Hospital. He works pretty closely with > Michael Kaplitt, and was instrumental in David's recovery post surgery. Dr. > Eidelberg believes that David has early-onset Parkinsons, brought on by the > environmental toxins in the gas station he owned with his brother, Jerry. > Jerry, btw, developed symptoms about 11 years ago, and died within 5 years. No > one in this long-lived family has ever shown symptoms of movement disorders > before David and Jerry. Now, however, a cousin has also been diagnosed, but > he was a chemist, handling and breathing chemicals for 40 years. Hmmmmmm. > > We're looking for a new neurologist who might be located in Florida. We > just moved from Long Island, NY, to Delray Beach, Florida. Dr. Eidelberg has > recommended a colleague of his by the name of Carlos Singer at the University > of Miami, but we haven't gotten in touch with him, yet. Does anyone know of > him? Is there anyone else whom some of you might recommend, someone who's > really involved exclusively with Parkinsons? > > Both David and I are looking forward to corresponding with this group. I do > most of the communicating, because David doesn't have the coordination to > type or use a mouse. However, he is directly involved with what I write. We'd > both like to know if anyone on this list has developed Parkinsons Disease > after working with or having been in an atmosphere of chemicals. > > It will be a pleasure getting to know you. > > Bev Bashe > > > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn