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Hi, Marsha. Interestingly enough, David's father originally had a cleaners. I wonder how much of the chemicals made it home to him on his dad's clothing? BTW, many of his uncles also had either service stations or dry cleaning establishments. None of them had PD, but all died of either cancer or lung problems. Bev ---- Marsha Lance <[log in to unmask]> wrote: > Hi, > I worked in a dry cleaning plant on and off for several years. My mother-in-law always thought that the chemicals caused my depression and my symptoms of PD. I am beginning to wonder if she was right. I was diagnoised in June but have had the systems for several years. The tremor in my right hand finally lead to my diagnoises. I am not comfortable with my neurolgist so I am looking for another one . I have been to the Baylor Hospital Movement clinic in Houston so I might just go there. It is only 3 hours from here. > Marsha > > Beverly Bashe <[log in to unmask]> wrote: > Hi, all. My name is Beverly Bashe, and I'm new to the list. I do not have Parkinson's Disease, but my husband, David, does. > > David has been ill at least 38 years...and we've been married for 40 years. He was not diagnosed until about 10 years ago, but has been on leva dopa for about 33 years. At this time, he's on Stalevo and Permax. > > Three years ago, David had brain stimulator surgery at New York Presbyterian Hospital after his ability to balance himself went down to near zero. Michael Kapplitt was his surgeon. Michael has been a special and treasured person in our lives. He's a fantastic surgeon, brilliant and passionate about his work, and is a compassionate physician and human being. In retrospect, I think that he worked with a neurologist in Toronto, perfecting the brain stimulator surgery before moving to NY. > > Although the surgery was successful, the disease continues its inexorable downward slide. David's mental profile prior to the surgery sent up some red flags as to the appropriateness of the operation, but, frankly, he had nowhere to go. Michael and I discussed the situation a couple of weeks prior to the operation. He stated that he didn't want to hurt David, but if he didn't have it, he'd be spending the rest of his life strapped in chairs. Yet...I'm not sure that the operation did him a favor: he was definitely damaged by the surgery, having lots of residual problems. His balance was restored, but that, too, is getting worse again due to the progression of the disease. > > David's neurologist, David Eidelberg, is in Manhasset, NY, and runs the Movement Disorders Clinic at North Shore Hospital. He works pretty closely with Michael Kaplitt, and was instrumental in David's recovery post surgery. Dr. Eidelberg believes that David has early-onset Parkinsons, brought on by the environmental toxins in the gas station he owned with his brother, Jerry. Jerry, btw, developed symptoms about 11 years ago, and died within 5 years. No one in this long-lived family has ever shown symptoms of movement disorders before David and Jerry. Now, however, a cousin has also been diagnosed, but he was a chemist, handling and breathing chemicals for 40 years. Hmmmmmm. > > We're looking for a new neurologist who might be located in Florida. We just moved from Long Island, NY, to Delray Beach, Florida. Dr. Eidelberg has recommended a colleague of his by the name of Carlos Singer at the University of Miami, but we haven't gotten in touch with him, yet. Does anyone know of him? Is there anyone else whom some of you might recommend, someone who's really involved exclusively with Parkinsons? > > Both David and I are looking forward to corresponding with this group. I do most of the communicating, because David doesn't have the coordination to type or use a mouse. However, he is directly involved with what I write. We'd both like to know if anyone on this list has developed Parkinsons Disease after working with or having been in an atmosphere of chemicals. > > It will be a pleasure getting to know you. > > Bev Bashe > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > > > > MARSHA > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn