Sam, I noticed the (Ms) after your name in an email. Are you female, I go by Ray instead of Rayilyn because its easier, but I'm often mistaken for a man. Once I got credit cards for Rayilyn Brown, Mrs Rayilyn Brown, and get this, the Reverend Rayilyn Brown! Ray ----- Original Message ----- From: "Sam Weber" <[log in to unmask]> To: <[log in to unmask]> Sent: Wednesday, January 04, 2006 3:33 AM Subject: Re: Welcome Newbies > Rayinlee > > Thank you for this very moving e-mail... your words have touched me > deeply... > > Thank you also for your advice to do what we love doing for as long as we > can. I intend to take this advice. I also intend to honour you, and > everybody else who is no longer able to do the thing I can, every time I > do > something that makes me happy. > > With love > Sam > > -----Original Message----- > From: Parkinson's Information Exchange Network > [mailto:[log in to unmask]]On Behalf Of rayilynlee > Sent: 03 January 2006 20:50 > To: [log in to unmask] > Subject: Welcome Newbies > > > The addition of so many newbies reminds us that Parkinson's is busy > claiming > more people. > > You are on an uncertain journey as we are all so different in our > reactions > to meds, progression of the disease and our attitude about it. > > There has not really been anything new in the way of treatment since I was > diagnosed ten years ago. Since the brain is so complicated and little > understood, it is unlikely, barring a serendipitous event, that the > outlook > will change in the near future, given the squabbles on the state level > over > nuclear transfer and ESCR and an impasse at the federal level. > > Why did we get it? Who knows. My grandfather died of it, I had very > toxic > chemotherapy for ovarian cancer and used to flea bomb my condo for my > dogs. > > Some people get relief from PD meds. Sinemet helped me once on the first > dose, but never again so I don't take any PD meds. Two DBS brain > surgeries > 2-1/2 years ago control my bilateral tremors but I strangle when I try to > speak. Is that due to PD progression or the DBS surgery? Who knows. > > Because I live alone, I keep going because I have to, with help once a > week. > Many posters are caregivers and we never hear from the PWP. When I joined > the list 6 years ago, Bob Armentrout welcomed me. He shared his very > graphic, dark, and reality-based poems about his PD with me. I have not > heard from him since. > > The only advice I would have for newbies, is do all you really want to do > and can do NOW! When I was first diagnosed at 60 I had a "honeymoon" > period for about 3-4 years and could have done more traveling. > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > Good luck, Ray > -- > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.1.371 / Virus Database: 267.14.12/220 - Release Date: > 03/01/2006 > > -- > No virus found in this outgoing message. > Checked by AVG Free Edition. > Version: 7.1.371 / Virus Database: 267.14.12/220 - Release Date: > 03/01/2006 > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn