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Hi Beverlly, Welcome to the List. I used to work in the microbiology department of a large soft drinks manufacturer, part of the daily routine involved sterilising the equipment by spraying it with methanol and then igniting it, which resulted in breathing in the fumes. I must have done this job for about one hour per day, every other week, for ten years I was diagnosed with PD in 1989, aged 35, can't say for sure that Methanol caused it, but I often wonder......... Best Wishes Nigel Harland . ----- Original Message ----- From: "Beverly Bashe" <[log in to unmask]> To: <[log in to unmask]> Sent: Monday, January 02, 2006 3:49 AM Subject: Intro > Hi, all. My name is Beverly Bashe, and I'm new to the list. I do not > have Parkinson's Disease, but my husband, David, does. > > David has been ill at least 38 years...and we've been married for 40 > years. He was not diagnosed until about 10 years ago, but has been on > leva dopa for about 33 years. At this time, he's on Stalevo and Permax. > > Three years ago, David had brain stimulator surgery at New York > Presbyterian Hospital after his ability to balance himself went down to > near zero. Michael Kapplitt was his surgeon. Michael has been a special > and treasured person in our lives. He's a fantastic surgeon, brilliant > and passionate about his work, and is a compassionate physician and human > being. In retrospect, I think that he worked with a neurologist in > Toronto, perfecting the brain stimulator surgery before moving to NY. > > Although the surgery was successful, the disease continues its inexorable > downward slide. David's mental profile prior to the surgery sent up some > red flags as to the appropriateness of the operation, but, frankly, he had > nowhere to go. Michael and I discussed the situation a couple of weeks > prior to the operation. He stated that he didn't want to hurt David, but > if he didn't have it, he'd be spending the rest of his life strapped in > chairs. Yet...I'm not sure that the operation did him a favor: he was > definitely damaged by the surgery, having lots of residual problems. His > balance was restored, but that, too, is getting worse again due to the > progression of the disease. > > David's neurologist, David Eidelberg, is in Manhasset, NY, and runs the > Movement Disorders Clinic at North Shore Hospital. He works pretty > closely with Michael Kaplitt, and was instrumental in David's recovery > post surgery. Dr. Eidelberg believes that David has early-onset > Parkinsons, brought on by the environmental toxins in the gas station he > owned with his brother, Jerry. Jerry, btw, developed symptoms about 11 > years ago, and died within 5 years. No one in this long-lived family has > ever shown symptoms of movement disorders before David and Jerry. Now, > however, a cousin has also been diagnosed, but he was a chemist, handling > and breathing chemicals for 40 years. Hmmmmmm. > > We're looking for a new neurologist who might be located in Florida. We > just moved from Long Island, NY, to Delray Beach, Florida. Dr. Eidelberg > has recommended a colleague of his by the name of Carlos Singer at the > University of Miami, but we haven't gotten in touch with him, yet. Does > anyone know of him? Is there anyone else whom some of you might > recommend, someone who's really involved exclusively with Parkinsons? > > Both David and I are looking forward to corresponding with this group. I > do most of the communicating, because David doesn't have the coordination > to type or use a mouse. However, he is directly involved with what I > write. We'd both like to know if anyone on this list has developed > Parkinsons Disease after working with or having been in an atmosphere of > chemicals. > > It will be a pleasure getting to know you. > > Bev Bashe > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn