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Bev: Welcome aboard. My husband (PWP) and I are also "emigres" from NYC - now living in Key Biscayne, FL (immediately south of Miami). Have been here for 5 years. My husband, who is 76, was diagnosed about 15 years ago. His movement disorder specialist here is Dr. Abraham Lieberman, a well-known, wonderfully rersourceful and seasoned specialist who practices in North Bay Village, FL (a bit north of Miami and Miami Beach). He has a web-site (www.liebermanparkinsonclinic.com) that is a great source of constantly updated information. He also answers questions from caregivers and PWPs - with quick turnaround. We are very happy with his management of Jerry's condition - which, of course, is a constant challenge. Dr. Carlos Singer is also a very highly regarded specialist. You cannot go wrong with him - altho it is not easy to get appointments, but perhaps with a referral from your NY docs that may be easier. If you are not already aware of them, you may also be interested in 2 caregiver listservs that are very helpful and create an extraordinary cyberspace support system that many of us are devoted to. One is CARE(Caregivers Are Really Essential) [log in to unmask] and the NPF Caregivers Forum (www.parkinson.org). This will take you into their main web-site from which you can access the caregivers forum. There is also a very active group of caregivers and PWPs in the Boca Raton-Delray Beach area led by Allison Landes who runs a foundation that, among other things, sponsors educationsl programs and provides info on support groups, etc. Will post the web-site- don't have access to it at the moment. Best of luck on your move. Hope you are able to hook up with good resources - and there are many in this area. Sue ----- Original Message ----- From: "Beverly Bashe" <[log in to unmask]> To: <[log in to unmask]> Sent: Sunday, January 01, 2006 10:49 PM Subject: Intro > Hi, all. My name is Beverly Bashe, and I'm new to the list. I do not > have Parkinson's Disease, but my husband, David, does. > > David has been ill at least 38 years...and we've been married for 40 > years. He was not diagnosed until about 10 years ago, but has been on > leva dopa for about 33 years. At this time, he's on Stalevo and Permax. > > Three years ago, David had brain stimulator surgery at New York > Presbyterian Hospital after his ability to balance himself went down to > near zero. Michael Kapplitt was his surgeon. Michael has been a special > and treasured person in our lives. He's a fantastic surgeon, brilliant > and passionate about his work, and is a compassionate physician and human > being. In retrospect, I think that he worked with a neurologist in > Toronto, perfecting the brain stimulator surgery before moving to NY. > > Although the surgery was successful, the disease continues its inexorable > downward slide. David's mental profile prior to the surgery sent up some > red flags as to the appropriateness of the operation, but, frankly, he had > nowhere to go. Michael and I discussed the situation a couple of weeks > prior to the operation. He stated that he didn't want to hurt David, but > if he didn't have it, he'd be spending the rest of his life strapped in > chairs. Yet...I'm not sure that the operation did him a favor: he was > definitely damaged by the surgery, having lots of residual problems. His > balance was restored, but that, too, is getting worse again due to the > progression of the disease. > > David's neurologist, David Eidelberg, is in Manhasset, NY, and runs the > Movement Disorders Clinic at North Shore Hospital. He works pretty > closely with Michael Kaplitt, and was instrumental in David's recovery > post surgery. Dr. Eidelberg believes that David has early-onset > Parkinsons, brought on by the environmental toxins in the gas station he > owned with his brother, Jerry. Jerry, btw, developed symptoms about 11 > years ago, and died within 5 years. No one in this long-lived family has > ever shown symptoms of movement disorders before David and Jerry. Now, > however, a cousin has also been diagnosed, but he was a chemist, handling > and breathing chemicals for 40 years. Hmmmmmm. > > We're looking for a new neurologist who might be located in Florida. We > just moved from Long Island, NY, to Delray Beach, Florida. Dr. Eidelberg > has recommended a colleague of his by the name of Carlos Singer at the > University of Miami, but we haven't gotten in touch with him, yet. Does > anyone know of him? Is there anyone else whom some of you might > recommend, someone who's really involved exclusively with Parkinsons? > > Both David and I are looking forward to corresponding with this group. I > do most of the communicating, because David doesn't have the coordination > to type or use a mouse. However, he is directly involved with what I > write. We'd both like to know if anyone on this list has developed > Parkinsons Disease after working with or having been in an atmosphere of > chemicals. > > It will be a pleasure getting to know you. > > Bev Bashe > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn