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With the beginning of this new year and the focus of our government on > reduced funding for so many domestic programs, I am prone to > believe that > efforts to accomplish very much at all in the way of health care > reform or > additional funding for programs such as this will be a challenge. What can I say about our wonderful government's priorities? Keeping Americans safe around the world! Not! Thanks, tho, Dee, for the interesting link. I had no idea the gov was tracking this kind of thing. I'll bet the corps don't like it. I'd also lay money that this will pass under the budget hatchet too, if it doesn't pass under the DeLay-ists' radar. I am willing and ready to participate in such a database. Enjoy winter! Rick McGirr Email: [log in to unmask] ----- Original Message ----- From: "Dolores Buente" <[log in to unmask]> To: <[log in to unmask]> Sent: Friday, January 06, 2006 12:08 PM Subject: Re: chemicals > Dear Rick, > > In regard to your post re: "Chemicals, how does our percentage > compares with > the public at large?" My response is...That question could be > answered with > a national data base for Parkinson's disease. In fact, a national > data base > could serve to track and profile numerous neurological conditions > that > affect our populace. > > In my investigations, I have come across two agencies that our > government > funds on a national scale. One is the "National Environmental > Public Health > Tracking Program." It is being developed by the CDC. Information > about this > program can be found on the CDC web site at > _http://www.cdc.gov/nceh/tracking/_ > (http://www.cdc.gov/nceh/tracking/) . There is a document that the > CDC has > prepared that describes a strategy for how this national tracking > system would > be used to identify environmental associations with disease. CDC > strategy.pdf. > > The second is the "Agency for Toxic Substances and Disease Registry, > (ATSDR)" It is a federal agency created in 1980 by the > Comprehensive Environmental > Response, Compensation and Liability Act or what is more commonly > known as > Superfund legislation. This agency is charged with assessing the > presence and > nature of health hazards at environmental Superfund sites, helping > to prevent > or reduce further exposure and any illness that might result, and > expanding > what is known about the health effects of exposure to CERCLA > hazardous > substances. > > In reviewing these agencies, my feeling is that neither of the two > would be > as effective as a simple registry of Parkinson's patients through > their > physician's referral of a patient fact- sheet to a central national > data record > center. This information could be used in conjunction with the > information > that these agencies currently gather as a comprehensive picture of > the > geographical, age prevalence, toxin exposure, environmental and > genetic backgrounds of > Parkinson's patients. > > Implementation of this plan will require extensive public and > political > support. With the beginning of this new year and the focus of our > government on > reduced funding for so many domestic programs, I am prone to > believe that > efforts to accomplish very much at all in the way of health care > reform or > additional funding for programs such as this will be a challenge. > > We have many unanswered questions about PD and toxic exposure. > Getting the > answers to those questions will depend upon the efforts we choose > to make. > > Dee > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn