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Our neuro says the same about Permax. If I were you, I would find another doctor. Carole ----- Original Message ----- From: "Beverly Bashe" <[log in to unmask]> To: <[log in to unmask]> Sent: Friday, January 20, 2006 7:35 AM Subject: Re: mirapex and requip / Another Point of View > I have taken Permax/Pergolide for almost 6yrs; >> side-effects - vascular >> damage. > > Hi. I'm very concerned about your statement, because my husband, David, > has > taken Permax/Pergolide for at least that amount of time. His fingernails > are often blue, his hands very cold, but no one so far has determined why > this is happening...nor is anyone duly concerned. Also, his breathing is > often labored, especially after the least amount of exercise such as > walking > from one room to another. > > Yesterday, I was at a talk given by the South Florida neurologist, Dr. > Thomas Hammond. His statement, "We don't really prescribe Permax anymore > due to heart valve problems," was scary...especially because David's > neurologist in NY has been routinely prescribing it for David...and > actually > renewed the scrip as early as a couple of weeks ago. > > We're seeing an associate of Dr. Carlos Singer's in a couple of weeks in > order to get David's DBS checked. I'm going to ask him about the > med...but > if this is seriously hazardous, perhaps something ought to be done > sooner????? We can't get to see Dr. Singer for months, yet.... Should we > consider finding another dr? > > Does anyone know Dr. Hammond? He seemed very, very knowledgeable and > compationate. David's neurologist in NY had recommended Dr. Singer, whom > I've heard is widely respected, but.... > > Bev Bashe cg to David 69/59/31?? > ----- Original Message ----- > From: "Carole Hercun" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Thursday, January 19, 2006 6:15 PM > Subject: Re: mirapex and requip / Another Point of View > > >> Well said, Marco. Although, sometimes, I just don't have >> the energy...Carole >> >> --- marco de michiel <[log in to unmask]> wrote: >> >>> Carole, >>> >>> With respect, I have to disagree with you. >>> >>> Yes, we (PWP's) have to take some form of medication to >>> manage the symptoms, >>> but we should not allow ourselves to be used by the >>> Pharmaceutical Co.'s >>> like specimens in a living laboratory; and continue >>> accepting that there >>> are serious side-effects leading to complications and >>> subsequent death. >>> Parkinson's in its self does not cause death. As long as >>> we remain silent >>> the Pharma co.'s will continue to go unchecked, making >>> obscene profits, and >>> convincing the medical world that fatalities, from >>> side-effects, are an >>> acceptable percentage; like a form of collateral damage. >>> >>> Like someone else mentioned, there's no drug on the >>> market which cure's; in >>> nearly all cases they are designed to control/suppress >>> the symptoms; and >>> virtually all have side-effects. The Pharma Co.'s are not >>> interested in >>> Cures because there's no long term revenue stream. Yet >>> they spend billions >>> in research, supposedly on finding cures but only ever >>> launch more drug's >>> that manage/control and sell at ridiculous prices, which >>> they justify >>> because of the high R&D cost. A disgusting example of the >>> consequence of >>> this, is the denial of a drug for MS, for my neighbour, >>> because his >>> age/profile fails the benefit/cost criteria, as set by >>> the NHS, BECAUSE OF >>> THE HIGH COST OF THE DRUG. Personally, I think he's >>> better off without the >>> drug. >>> >>> I have taken Permax/Pergolide for almost 6yrs; >>> side-effects - vasculor >>> damage. >>> >>> Mirapex - side effects as noted. >>> >>> Sinemet - increased dosage leads to accelerated >>> depletion of natural >>> dopamine and subsequent loss of effectiveness. >>> >>> We live in an age of technology; we have the power of the >>> internet to access >>> data, share findings and prepare/collate results. PD may >>> affect our ability >>> to walk but it hasn't taken away our capacity to think >>> and argue our case. >>> As long as we have our minds, we can [should] >>> constructively challenge the >>> status-quo; and force changes in diagnosis and >>> alternative therapies. We owe >>> it to ourselves and to future generations, to do so, tto >>> contain and sink >>> this Neurological 'iceberg'. >>> >>> Marco [UK] >>> >>> >> ---------------------------------------------------------------------- >>> To sign-off Parkinsn send a message to: >>> mailto:[log in to unmask] >>> In the body of the message put: signoff parkinsn >>> >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn