Marco Just to let you know that I would also gladly fill in any questionnaire you post, answer any question anyone may think is valid. We seem to be a group of really intelligent people, us PwP, who think about stuff. This could be a platform for empowering ourselves further with a greater, more comprehensive understanding of our condition. That would already be a really neat outcome for me! Regards Sam -----Original Message----- From: Parkinson's Information Exchange Network [mailto:[log in to unmask]]On Behalf Of Gentry, Greyling Sent: 21 January 2006 10:37 To: [log in to unmask] Subject: Re: database I anxiously await your questionnaire, Marco. I too have been astounded at the number of responses indicating exposures to chemicals, anesthetics, etc. It seems almost criminal NOT to document and assess all possible causative factors, but then we know that both giant agri-business and big pharma have amassed incredible power with the help of the current administration. I do large-scale database work for Hewlett-Packard and will help however I can. ~ Greyling -----Original Message----- From: Parkinson's Information Exchange Network [mailto:[log in to unmask]] On Behalf Of marco de michiel Sent: Friday, January 20, 2006 9:23 PM To: [log in to unmask] Subject: Re: database Sam, I think the data from this group would yield significant statistics and trends if every one completed a very detailed questionnaire. To the best of my knowledge it is the largest group of PwP's on the Internet and unlike a few years ago the recent postings/emails are more strongly worded in expressing concerns about Chemicals, Medications and Neuro's & GP's. The cynic in me expects that the same old stuff will be poured out at the PD Conference in Washington. We need to find a 'champion' who has credibilty and visibility, to take the data we produce, to present the findings such that changes to environmental factors, diagnostic procedures and therapies can be implemented. We have a voice, the trouble is that it is currently subjective and apathetic; it has to become objective and assertive. I intend to redraft my original questionnaire and post it to the group for comment; I used the word 'detailed' above, this doesn't mean verbose; it means many sections with simple numerical, Y/N, one word responses; which is simpler to input and analyse. The challenge is immense but I intend to keep on pushing for change; to expose the Pharmaceutical Co.'s and their 'sister' Agrochemical and Industrial Chemical Co.'s and the people in their 'pockets'. The 'Sshaking Palsy' as observed by Dr. James Parkinson may have affected 'man' since earliest times but my belief is that the cause is various toxins entering the brain via the blood, and not part of a natural aging process. Some will say I'm not qualified and that I'm talking nonsense. But yesterday my Reflexologist told me that a GP she knows said, '...if I had known how much control the pharmaceutical co.'s have over us, I would never have become a Doctor.......'. This underpins my belief and motivation. The Pharmaceutial Co.'s, Other Chemical Co.'s, Other Industrial Co.'s, Medical groups and Government departments have been collating and analysing data since the first commercial computers became available but they either keep their findings 'secret' or publish distorted results that support their goals and objectives. We could do nothing but accept. But today there is no excuse for doing nothing. Each PIEN member has a PC with more processing and storage capacity than Mainframe computers of 3rd/4th generation. The reality is that we use them for WP, email, Internet access, Media and Games. I ask all members of PIEN to take part in establishing the nucleus of a world-wide database. regards, Marco ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.375 / Virus Database: 267.14.21/236 - Release Date: 20/01/2006 -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.375 / Virus Database: 267.14.21/236 - Release Date: 20/01/2006 ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn