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Well said, Marco. Although, sometimes, I just don't have
the energy...Carole

--- marco de michiel <[log in to unmask]> wrote:

> Carole,
>
> With respect, I have to disagree with you.
>
> Yes, we (PWP's) have to take some form of medication to
> manage the symptoms,
> but we should not allow ourselves to be used by the
> Pharmaceutical Co.'s
> like specimens in a living laboratory; and continue
> accepting  that there
> are serious side-effects leading to complications and
> subsequent death.
> Parkinson's in its self does not cause death. As long as
> we remain silent
> the Pharma co.'s will continue to go unchecked, making
> obscene profits, and
> convincing the medical world that fatalities, from
> side-effects, are an
> acceptable percentage; like a form of collateral damage.
>
> Like someone else mentioned, there's no drug on the
> market which cure's; in
> nearly all cases they are designed to control/suppress
> the symptoms; and
> virtually all have side-effects. The Pharma Co.'s are not
> interested in
> Cures because there's no long term revenue stream. Yet
> they spend billions
> in research, supposedly on finding cures but only ever
> launch more drug's
> that manage/control and sell at ridiculous prices, which
> they justify
> because of the high R&D cost. A disgusting example of the
> consequence of
> this, is the denial of a drug for MS, for my neighbour,
> because his
> age/profile fails the benefit/cost criteria, as set by
> the NHS, BECAUSE OF
> THE HIGH COST OF THE DRUG. Personally, I think he's
> better off without the
> drug.
>
> I have taken Permax/Pergolide for almost 6yrs;
> side-effects - vasculor
> damage.
>
> Mirapex - side effects as noted.
>
> Sinemet -  increased dosage leads to accelerated
> depletion of natural
> dopamine and subsequent loss of effectiveness.
>
> We live in an age of technology; we have the power of the
> internet to access
> data, share findings and prepare/collate results. PD may
> affect our ability
> to walk but it hasn't taken away our capacity to think
> and argue our case.
> As long as we have our minds, we can [should]
> constructively challenge the
> status-quo; and force changes in diagnosis and
> alternative therapies. We owe
> it to ourselves and to future generations, to do so, tto
> contain and sink
> this Neurological 'iceberg'.
>
> Marco [UK]
>
>
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