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Very well said, Jeffrey.  These are exactly the problems that have developed
on the list.  If we could ALL just take a deep breath, step back, and try to
look at these things (including our own posts) as objectively as we can,
perhaps we could resolve it while preserving the benefits of a very useful
list.  It's easy to get emotions stirred up and lose sight of the objective.
A list like this isn't just for the initiatives of a few but for the benefit
of the many.

Carole and Ted



----- Original Message -----
From: "Jeffrey" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Friday, January 27, 2006 1:34 AM
Subject: Re: Acceptable Topics for the Parkinsn List


> It is worth bearing in mind that a discussion forum is not a democracy.
> However, discussion fora exist within a democracy. A discussion forum is
> a mailing list owned and maintained by a human being. If you have never
> managed a discussion forum, you will not appreciate that they demand a
> lot of time and work. And in most cases, it is a labour of love. JC is
> not, to my knowledge, paid or in any way financially compensated for his
> time and efforts to maintain this forum.
>
> Almost every discussion forum focuses on specific topic and provides a
> means for people with an interest in that topic to communicate. When the
> discussion gets too far away from the topic, a good forum owner will
> bring discussion back again - just as a history professor will bring a
> class discussion - which has veered into a different topic - back to the
> topic at hand. That is because if the moderator does not keep the focus,
> the list will almost inevitably fall apart.
>
> Thus, whether you agree or not, JC has every right to bring discussion
> back to the topic at hand. Just as you have every right to leave the
> forum, join a forum focusing on the issues that interest or start your
> own forum and moderate it as you please. As I said, fora exist in a
> democracy that allows you that freedom.
>
> JC has not banned all political discussion. He has just asked us to
> avoid getting too far from the issue of Parkinson's. One would assume
> keeping members informed of issues regarding stem cell research and how
> politicians stand on the issue would be relevant. Arguing about
> creationism versus evolution, pointing out that a president of a country
> is an idiot or arguing over abortion legislation from a religious
> perspective is, you must admit, getting very far from the issue of
> Parkinson's.
>
> Bear in mind that a decade ago, you could not have had a forum like this
> with so many people from so many places being able to communicate with
> each other. Many of you likely would have had far fewer fellow
> Parkinson's sufferers to share thoughts with.
>
> So, accept that JC has made the effort to set up and maintain this
> forum, that he has not deleted your messages complaining about his
> request and that this forum provides wonderful opportunities to
> communicate with others sharing your condition. And if you can't do
> that, find or start another forum that suits your specific needs.
>
> Jeffrey
>
> Gentry, Greyling wrote:
>> "As nightfall does not come at once, neither does oppression. In both
>> instances, there's a twilight where everything remains seemingly
>> unchanged, and it is in such twilight that we must be aware of change in
>> the air, however slight, lest we become unwitting victims of the
>> darkness."
>>
>> -- William O. Douglas, longest serving Justice (36 years) U. S. Supreme
>> Court.
>>
>> It seems night is falling, even here on the Parkinson's list. I'm very
>> sad to see partisan censorship curtailing honest, productive discussion
>> about how to further pertinent -- and possibly lifesaving -- legislation
>> and funding. I'd urge everyone to think carefully before jumping on the
>> censorship bandwagon. A few intolerant people should never be allowed to
>> dictate to the many.
>>
>> ~ Greyling
>>
>>
>> -----Original Message-----
>> From: Parkinson's Information Exchange Network
>> [mailto:[log in to unmask]] On Behalf Of marco de michiel
>> Sent: Wednesday, January 25, 2006 7:16 PM
>> To: [log in to unmask]
>> Subject: Re: Acceptable Topics for the Parkinsn List
>>
>> Rick,
>>
>> I completely agree with you but I think we have to accept the contents
>> of
>> the 'charter' exist and that if one 'steps out of line', one is likely
>> to be
>> removed. I feel my emails regarding a database are the target of JC's
>> email;
>> the fact he hasn't replied to my one seeking clarification would suggest
>> this is so.  We can discuss the dbase outside of this group; my address
>> is
>> [log in to unmask] - any one else that's interested can also
>> email
>> me.
>>
>> I have no intention to just sit and wait for the end; God gave me a
>> brain
>> and I intend to use it. The Doctor who replied to JC's email with the
>> words,
>> 'that's the boy John', has waved another red rag....
>>
>> Hopefully I'll hear from you.
>> Marco
>>
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>
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