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Hi, David. Thanks for your comments. Unfortunately, I've been taking the dr.'s word on everything, my only concern being how it outwardly affected my husband: i.e., whether his PD symptoms were alleviated or exacerbated. Obviously, I should have been looking further. The problem is that David has done really well on Permax. After the DBS, he reduced his dose by one pill/day. Now, he takes 1/2 of a .75mg Pergolide 4x/day rather than 5x/day. His thinking, posture, emotions are all "off" when he doesn't take his regular dose. The Pergolide appears to have been even more important in his daily functioning than the Stalevo he takes 5-6x/day. Obviously, I'm very concerned about the other effects of Pergolide and will be discussing this with our new neuro on Feb. 2. Thanks, again. Without this list, we would have gone on blithely unaware of the seriousness of the situation. Sincerely, Bev Bashe ----- Original Message ----- From: "DAVID LEWIN" <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, January 21, 2006 11:30 AM Subject: Re: permax > Bev: > Take everything you hear from the doctor as a reference point to do > further > research. I read about the side effects from Permax years ago and decided > against it even though my neuro was loading me up with free samples while > dismissing my concerns. The doctors don't know with any degree of > certainty. You have to do your own research and make your own > determinations. This web-site offers a tremendous amount of insight into > PD > and medications because we take the drugs and experience the consequences. > Good luck, David > > >>From: Ted Menser <[log in to unmask]> >>Reply-To: Ted Menser <[log in to unmask]> >>To: [log in to unmask] >>Subject: Re: mirapex and requip / Another Point of View >>Date: Sat, 21 Jan 2006 00:38:32 -0800 >> >>Our neuro says the same about Permax. If I were you, I would find another >>doctor. >> >>Carole >> >> >>----- Original Message ----- >>From: "Beverly Bashe" <[log in to unmask]> >>To: <[log in to unmask]> >>Sent: Friday, January 20, 2006 7:35 AM >>Subject: Re: mirapex and requip / Another Point of View >> >> >>>I have taken Permax/Pergolide for almost 6yrs; >>>>side-effects - vascular >>>>damage. >>> >>>Hi. I'm very concerned about your statement, because my husband, David, >>>has >>>taken Permax/Pergolide for at least that amount of time. His fingernails >>>are often blue, his hands very cold, but no one so far has determined why >>>this is happening...nor is anyone duly concerned. Also, his breathing >>>is >>>often labored, especially after the least amount of exercise such as >>>walking >>>from one room to another. >>> >>>Yesterday, I was at a talk given by the South Florida neurologist, Dr. >>>Thomas Hammond. His statement, "We don't really prescribe Permax anymore >>>due to heart valve problems," was scary...especially because David's >>>neurologist in NY has been routinely prescribing it for David...and >>>actually >>>renewed the scrip as early as a couple of weeks ago. >>> >>>We're seeing an associate of Dr. Carlos Singer's in a couple of weeks in >>>order to get David's DBS checked. I'm going to ask him about the >>>med...but >>>if this is seriously hazardous, perhaps something ought to be done >>>sooner????? We can't get to see Dr. Singer for months, yet.... Should >>>we >>>consider finding another dr? >>> >>>Does anyone know Dr. Hammond? He seemed very, very knowledgeable and >>>compationate. David's neurologist in NY had recommended Dr. Singer, whom >>>I've heard is widely respected, but.... >>> >>>Bev Bashe cg to David 69/59/31?? >>>----- Original Message ----- >>>From: "Carole Hercun" <[log in to unmask]> >>>To: <[log in to unmask]> >>>Sent: Thursday, January 19, 2006 6:15 PM >>>Subject: Re: mirapex and requip / Another Point of View >>> >>> >>>>Well said, Marco. Although, sometimes, I just don't have >>>>the energy...Carole >>>> >>>>--- marco de michiel <[log in to unmask]> wrote: >>>> >>>>>Carole, >>>>> >>>>>With respect, I have to disagree with you. >>>>> >>>>>Yes, we (PWP's) have to take some form of medication to >>>>>manage the symptoms, >>>>>but we should not allow ourselves to be used by the >>>>>Pharmaceutical Co.'s >>>>>like specimens in a living laboratory; and continue >>>>>accepting that there >>>>>are serious side-effects leading to complications and >>>>>subsequent death. >>>>>Parkinson's in its self does not cause death. As long as >>>>>we remain silent >>>>>the Pharma co.'s will continue to go unchecked, making >>>>>obscene profits, and >>>>>convincing the medical world that fatalities, from >>>>>side-effects, are an >>>>>acceptable percentage; like a form of collateral damage. >>>>> >>>>>Like someone else mentioned, there's no drug on the >>>>>market which cure's; in >>>>>nearly all cases they are designed to control/suppress >>>>>the symptoms; and >>>>>virtually all have side-effects. The Pharma Co.'s are not >>>>>interested in >>>>>Cures because there's no long term revenue stream. Yet >>>>>they spend billions >>>>>in research, supposedly on finding cures but only ever >>>>>launch more drug's >>>>>that manage/control and sell at ridiculous prices, which >>>>>they justify >>>>>because of the high R&D cost. A disgusting example of the >>>>>consequence of >>>>>this, is the denial of a drug for MS, for my neighbour, >>>>>because his >>>>>age/profile fails the benefit/cost criteria, as set by >>>>>the NHS, BECAUSE OF >>>>>THE HIGH COST OF THE DRUG. Personally, I think he's >>>>>better off without the >>>>>drug. >>>>> >>>>>I have taken Permax/Pergolide for almost 6yrs; >>>>>side-effects - vasculor >>>>>damage. >>>>> >>>>>Mirapex - side effects as noted. >>>>> >>>>>Sinemet - increased dosage leads to accelerated >>>>>depletion of natural >>>>>dopamine and subsequent loss of effectiveness. >>>>> >>>>>We live in an age of technology; we have the power of the >>>>>internet to access >>>>>data, share findings and prepare/collate results. PD may >>>>>affect our ability >>>>>to walk but it hasn't taken away our capacity to think >>>>>and argue our case. >>>>>As long as we have our minds, we can [should] >>>>>constructively challenge the >>>>>status-quo; and force changes in diagnosis and >>>>>alternative therapies. We owe >>>>>it to ourselves and to future generations, to do so, tto >>>>>contain and sink >>>>>this Neurological 'iceberg'. >>>>> >>>>>Marco [UK] >>>>> >>>>> >>>>---------------------------------------------------------------------- >>>>>To sign-off Parkinsn send a message to: >>>>>mailto:[log in to unmask] >>>>>In the body of the message put: signoff parkinsn >>>>> >>>> >>>>---------------------------------------------------------------------- >>>>To sign-off Parkinsn send a message to: >>>>mailto:[log in to unmask] >>>>In the body of the message put: signoff parkinsn >>> >>>---------------------------------------------------------------------- >>>To sign-off Parkinsn send a message to: >>>mailto:[log in to unmask] >>>In the body of the message put: signoff parkinsn >>> >>> >> >>---------------------------------------------------------------------- >>To sign-off Parkinsn send a message to: >>mailto:[log in to unmask] >>In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn