John- Thanks for posting the info/science articles. They give me hope-just the medicine I need on a rainy day during this gloomiest time of year. As a former R.N., I used to keep up with the journals/most of the latest research, but I have gotten lazy. I know Maryse and some of the others do a fine job posting research articles. Would you be adverse to me doing the same thing? I promise to keep Elorac's antics on the Sparkle list. :) Carole Hercun --- John Cottingham <[log in to unmask]> wrote: > The source of this article is Pilot Online: > http://tinyurl.com/9f63q > > Former Navy nurse takes advocacy for patients to the FDA > By JANETTE RODRIGUES, The Virginian-Pilot > � January 28, 2006 > Last updated: 12:13 AM > > > CHESAPEAKE � Katherine Decker had one goal when she was a > girl growing up > dirt poor on a Georgia farm: Make her parents proud by > getting good-enough > grades to go to college and become a doctor. > > The summer after her freshman year in college, she worked > as a nurse�s > assistant, seeing first hand who the real caregivers are > in medicine. > > �Doctors are only there for five or 10 minutes,� she > said, sitting in the > sun room of her Western Branch home. �And if you don�t > have a good nurse > telling the doctor what is going on with that patient, > the patient will > suffer.� > > Decker cared for patients as a registered nurse, nursing > school professor > and longtime director of the nursing program at > Portsmouth City Public > Schools. Now she�s caring for them as a Parkinson�s > disease patient > advocate for a new Food and Drug Administration program. > > She�s one of only three people nationally selected for > the role. > > Decker comes to her new job with a rare perspective. In > 1993, she was > diagnosed with Parkinson�s. > > The FDA believes the program, mirrored after ones for > cancer patients, will > help bring better and safer Parkinson�s drugs to market. > > Parkinson�s has no cure. It is a chronic, progressive > neurological disease > that affects 500,000 people in America. It causes > tremors, loss of motion > and facial expression, impaired balance and coordination > and sometimes > dementia. > > �I have a mind that is active, but a body that is slow to > react,� said > Decker, who uses a rolling walker. �Parkinson�s has been > a part of my life > for so long. It really changes things., and frustrations > occur.� > > When a pharmaceutical company applies for FDA approval of > a drug, Decker > will be among those who ensure that patients in clinical > trials have a > chance to weigh in while the medication is in > development. > > This wasn�t always the case, she said. She and two other > Parkinson�s > patients, a former business magazine editor and a > clinical psychologist, > were chosen by the federal agency last year. > > The patient consultants, all volunteers, will advise the > FDA and drug > companies on how to improve things like clinical trials . > The federal > agency provides the patient consultants with rigorous > training that > includes frequent teleconferences and a lot of reading. > > Decker, a former Navy nurse, taught practical nursing to > Portsmouth for 35 > years. She loved it, seeing students go through the > program and mature into > licensed practical and registered nurses . > > Toward the end of her career, after she was diagnosed, > she kept her > condition to herself. When she went to Norfolk Sentara > General to have a > brain stimulator installed a few years ago, she ran into > one of her > students. The student had no idea she had Parkinson�s. > > But the disease has progressed . Her husband of 39 years, > Richard, has > assumed the role that was once her�s � caregiver. > > �Personally, I never really thought he would be able to > do what he does,� > she said, smiling. �He�s wonderful.� > > Parkinson�s doesn�t run in Decker�s family. She didn�t > know what was > happening to her when she noticed an odd swelling on the > right side of her > body, from head to foot, while she was attending a state > health occupations > conference in 1993. > > She does have her suspicions. In March 1993, she began > the first of three > hepatitis B vaccinations. In few months later, she > experienced tremors on > her right side and difficulty writing. > > Two weeks later, she was in a neurologist�s office. > > �At the time, we didn�t make the connection with the > vaccinations,� Decker > said. �But if you look at the fine print on the hepatitis > B vaccination, it > says �neurological symptoms.� > > She believes a patient consultant could have questioned > the drug company > and FDA about the little know side effect to the popular > vaccination. > > > Reach Janette Rodrigues at (757) 222-5208 or > [log in to unmask] > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn