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Right on! >From: rayilynlee <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: Invisibility >Date: Wed, 1 Feb 2006 12:10:40 -0700 > >We are not only invisible to our government, but to our fellow citizens. > >Although millions are afflicted by incurable diseases and conditions, >millions are not, and for most people it has to happen to them to pay >attention. They quite naturally don't think it will happen to them and are >busy living their lives. Things would be different if EVERYONE got PD or >Huntington's disease. > >Ask yourself, how interested were you before PD? When I was young I >volunteered in a spinal cord injury ward, but didn't last long because it >was so depressing and hopeless. > >Advocacy is left mainly to patients and/or their CGs. It is very difficult >to fight a disease and politicians and their supporters who oppose >research. When people were protesting IVF, blood transfusions, organ >transplants, etc. the government was not opposing it, as I recall. > >I have pretty much accepted the fact that there will be no progress in my >lifetime. Being a teacher and student of history has taught me that life >is terribly unfair. My philosophy (my minor) is simple: we should do all >we can to change that injustice. > >Before the lights go out, > >---------------------------------------------------------------------- >To sign-off Parkinsn send a message to: >mailto:[log in to unmask] >In the body of the message put: signoff parkinsn >Ray ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn